Seizures getting worse

[Dugstar]

Hi I'm on lacosamide but only 100mg once a day but my head has now started to feel really shaky I have absence seizures but have had a cluster of them whilst at work so they called ambulance I then had another one in hospital where all my limbs went limp and I lost consciousness for a very short while this is when they upped my medication to 100mg since home its now been 8 weeks & I've had a couple of absence fits and a grand mal fit which I've never had before my epilepsy nurse has said up lacosamide but I'm scared of them increasing anymore 🙄 my fits are caused by a small Dnet brain tumour that hasn't grown, any advice grateful for 😁

[EpilepsyAction1 Partner Epilepsy Action]

Dear Dugstar

Thank you for your post.

It can be a difficult time finding the right epilepsy medicine. Rather than not increasing your medicine, it would be best to talk to your epilepsy nurse again about your concerns.

For some people with epilepsy, the first epilepsy medicine they try will stop their seizures. But some people need to try different ones to find the one that works for them.

If your seizures get any worse when you increase your medicine, again you would talk to your epilepsy nurse. If needed, they may change you to a different epilepsy medicine.

Here is a link to our information on epilepsy treatment epilepsy.org.uk/info/treatment

I hope you hear from others on this platform, as sharing information and experiences can be a good idea. If you don’t hear from others in a similar situation, you may wish to try our other services.

There is our forum4e online community forum.epilepsy.org.uk/, facebook.com/epilepsyaction and twitter twitter.com/epilepsyaction.

If we can be of any more help, please feel free to contact us again. If you’d like to talk to us, the Epilepsy Action Helpline freephone 0808 800 5050 is open Monday to Thursday 8.30am until 8.00pm, Friday 8.30am until 4.30pm and Saturday 10.00am until 4.00pm.

Regards

Diane

Epilepsy Action Helpline Team

[Dugstar in reply to EpilepsyAction1]

Thankyou it's very scary 😱

[EpilepsyAction1 Partner Epilepsy Action in reply to Dugstar]

It can be. And were here if you have any concerns or questions.

I hope with time things will improve for you.

Diane