Hi everyone, I’m new to this group and hoping someone can just help clarify and advise me. I have an appointment with a neurologist coming up next month and I’m not sure what to expect, I have zero experience with neurology and am a little confused why I’m even being sent.
Here’s the story in a nutshell, I’ve suffered from strange “attacks” since I was at least in my teens, I’m now 33. These attacks happen very randomly, and not too often. The last one happened 2 months ago, and before that I had 2 in the course of a week in 2015. I thought these attacks were associated with my stomach conditions (of which I have a few) so I went to my gastro after the latest episode and he said this is likely epilepsy and gave me the referral for neurology.
Here’s what happens in an “attack”: I get this weird feeling in the throat, like someone is squeezing the top of my throat (near my tongue) with two fingers and it’s hard to swallow, I start to salivate with a weird taste that’s hard to describe. Since I was a kid I thought this meant I needed to throw up, so I always go to the toilet spit out the saliva but am unable to throw up. Then I start getting quite weak, I have to sit on the can, my body starts to relieve itself (to put it nicely) and at the same time I start sweating profusely, I’m talking pools of water on the floor. During this time I’m very cold, I get goosebumps and I feel like I’m fighting to stay conscious, it’s a struggle every time but I’ve never passed out. Then at the end of this whole thing I urinate and it’s “over”. I feel super exhausted and I have to lie down but the feeling of death is gone. The entire ordeal can last 10-20 minutes.
Does this sound like epilepsy? Does anyone have an idea what’s going on?
I also have bradycardia (slow heart) and some of these symptoms are similar to a heart attack from what I’ve read, can anyone chime in on that?
And can anyone just give whatever advise you think I could use for my first visit?
I have all sorts of other conditions, but this whole neurology thing is completely new to me. And I always thought epilepsy meant having a violent seizure that knocks you out for a few seconds, so I’m just trying to figure things out and learn now. All and any help is super appreciated.