just found out a few weeks ago that my hubby has epilepsy, the meds have really not improved his situation at all, he has had more seizures in the past month than he had in the past year.. very traumatic, he is strugling to come to terms with all of this and is very depressed..
how do i help him? ...
I replied to another post earlier on the same subject. I was like your husband and it was nearly 15 years before the seizures were controlled, but not fully but bearable! ! It's a case of 'give it time '. Good luck.
Hi
Sometimes it can take a while to get on the right dose of the right epilepsy medicine. If your husband has only been recently diagnosed he may not yet be on a dose of the epilepsy medicine which is going to control his seizures.
And it can take a while to come to terms with a long term health condition. Here are the different types of support Epilepsy Action offers. Maybe something on there will help him. We also have information on epilepsy and depression.
I really hope things improve for your husband soon. If he continues to feel depressed it would be a good idea for him to discuss this with his family doctor.
Regards
Cherry
Epilepsy Action Helpline Team
Epilepsy medicines: epilepsy.org.uk/info/treatm...
newly diagnosed: epilepsy.org.uk/info/newly-...
support: epilepsy.org.uk/info/suppor...
depression: epilepsy.org.uk/info/depres...
I have been in a similar position myself and it can take a long time (years) between seeing neurologists and getting the right medication that can help(if at all). Its a hard thing to accept and he will probably go through lots of spells of depression. Only advice that i could give you is that getting outside and enjoying any time that he can, be it in the garden or out walking somewhere can take your mind of things and give him a little lift. Can be a very long time before diagnosis and any sort of effective treatment.
Be prepared for side effects on the medication too as they can make depression worse before it gets any better.
Sorry if i sound negative about this, but i am only giving you advice from my own personal experience.
One thing that helped my son was keeping a diary or journal to try and identify some triggers that were contributing to the seizures. What we now know is that it's very important for him to get a full night's sleep and to prepare in advance for activities so that he's not rushing around at the last minute to get ready to go out.
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