Hi, my 19 year old son was diagnosed with generalised ideopathic epilepsy 3 years ago - basically, they don't know the cause. Later, as we discussed it, he told me that he had smacked his head against a wall in anger, which caused him minor concussion ( he had to sit and wasn't speakig properly). We told the neurologist, but was told that this was unlikely the cause, even though this happened a week or so prior to his first tonic, clonic seizure ( he also suffers absence seizures about 10 - 20 times a day, more frequent in the mornings). Initially, my husband was here to help, so I didn't have to cope on my own. However, we have since seperated (2 1/2 years ago) and I am now trying to deal with this by myself. I fell that I need to be here for my son upon his waking, but as he is a teenager, he stays awake till stupid hours, talking with his friends etc, so I never know when he will wake. Fortunately I work part-time evenings, so I am able to be here for most of the time, the problem is affecting my family life ( I have another son and four grandchildren), my social life (I rarely go to visit people) and generally my whole life. I am afraid of not being here when he wakes as I see the fear in his eyes at the onset of a seizure and I despair at the thout of him suffering that whilst on his own : ( Any suggestions as to coping strategies that may help? How do others deal with this?
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