Been to clinical this morning, I have lots of different things going on with the latest being tonic clonic seizures. In August 2012 I started with what I call frozen episodes, I've brought this up in rheumy and neuro appointments but not got anywhere until the full blown seizures. They now say these are probably partial seizures. I've looked back through my INR records and I started with a target of 2.5 (2-3), in feb 2011 this was changed to 4 (3.5-4.5), then in August 2012 changed back to 2.5 (2-3) as I was still having bad headaches and other things and I was worried about INR being that level. Bizarrely now I've looked my frozen episodes started at the same time as this change (although when I had the first two my INR was higher), I'm now thinking could there be some relation between this and wondered if anyone else has any experience.
I do have other stuff going on and rheumy and neuro disagree, I've been diagnosed with vasculitis (neuro says vasculopathy), lupus, APS, been diabetic a long time and then now the seizures. In clinical today I said that I think you could put three consultants together and they could argue about me (the dr today agreed!).
Interested to hear if anyone else has noticed a relation with INR and seizures. Also when I have the frozen episodes I remember everything can speak but feel like the plug has been pulled on me. On Tuesday I ended up going to A&E (which is a rare thing) as I've had really bad headache for a few weeks and numbness on left side of face but then I was struggling to communicate and I felt like something wasn't connected properly (not sure how else to describe it). They have said that they think I had a partial seizure (which caused the communication issues) and my INR was too low which was prob causing headaches and numbness. Would like to know if anyone has partial seizures where you and people around you are unaware that anything has happened. In clinic today the dr said that it can be just one or two seconds so you're not aware of it and also said that APS can cause seizures.