Hi I have just found this web site through my epilepsy news letter. I am asking on behalf
of my son (who's lap top has broken) Do any of your members know where abouts
in the say Stockport/Denton/Middleton area where people(adults) with epilepsy meet and chat
about there condition, or just get together socially. Thanks
Hi, regret I am based in South Africa, but hopefully your son will find a support group to chat and find out more. Keep us updated as to progress made and wishing him all the best! He is welcome to chat to us anytime!
thanks for your good wishes, I will pass the message on thanks
Best way to find out, use some of the Epilepsy websites like Epilepsy Action you can find out where meetings are held and people to chat with, I find them really helpful, I've been to some meetings in Leeds, but they do them all over the country. hope that helps
Sandy
Hi there Sandy, I read with huge interest your caring comment, I have tapped in Epilepsy Action on my search engine yet could you be kind enough to give me the actual website as so much comes up I am unsure which site you mean? I look forward to your reply. Many thanks and Best Wishes to you.
I myself have only joined this site, yet have found it immensely rewarding and a relief to know I am not on my own, I live just outside London and I contacted the Partnership Trust for the NHS in my County to ask the same question, yet sadly with all the changes and cut backs and PCT commissioner teams being dismantled they could not help me yet suggested asking my GP if they knew of a meeting place within my County. It seems that as the NHS is having to have a massive change the pressure is now on our own GP,s etc. Yet I find just reading others comments on this site helps me to just take it at a day at a time - I hope this is of use to you?
Best Wishes for you and your family.
Hi Yenwarp, thanks for replying to my initial e mail, and as you say it is extremely
rewarding to know that people with epilepsy on not on their own, as I have found
that my son and I have felt slightly isolated because we know of no one with
the condition who we can chat to, hence my enquiry. It is sad to hear that the
NHS have further monitary constraints which could help. I agree reading other comments on this site very helpful. regards to you and your family
Many thanks for your kind and warming reply, as you have said so correctly just to know there are others who feel isolated like you and your son with myself until recently is reassuring to know that it was a wonderful idea to set this site up for the likes of all of us to learn and share our own experience's from each other. Great idea and it works for me. Best Wishes to you and your family once again.
PT26, My daughters read your first question and as usual they noticed you mentioned about your son's laptop being broken, My own epilepsy prevents me from watch TV and films and news with flash photography. Yet I saved up and purchased a HDMI Senseye 3 LED BENQ 24inch Monitor with 1080 pixels and built in speakers. On the receipt it says "BenQ 24" Full HD LCD (with speakers.) Cost £108.33p. This has greatly improved my use of the computer, that is the reason I joined the site recently as after about 30 minutes on my old screen I began to feel tired - uncoordinated and confused with the screen having to turn it off and rest on the bed for a while. I wish and hope this may be of interest to you for your son as epilepsy does with individuals depending on what drugs we are prescribed brings on different side effects yet controllable once we have the right medication. I apologise for not mentioning this before yet I have 3 daughters aged 21 -23 -and 25 who seem to know more of how I am in the day than myself. We have a little saying as a family. "Dad out of 10 how are you today?" Then they know what and how to support me. If I say above 6/10 then they know I am struggling slightly with Epilepsy. I hope this is of use to you and others who may read this. Best Wishes again to you and all your end.
Hi Yenwarp, Thanks for your detailed reply about the screen, the only
thing I have noticed that his eyes getting very bloodshot when he
has been on his laptop, so this is possible another avenue to explore,
he has not sorted it out yet, doesn't generally rush things. As you
say medication has a great deal of effect on him, memory, moods,
tiredness. He unfortunately not seizure free even though he is
on 2 types of medication, so I have the added stress and unpredictability of when they will occur, but as your family have noticed
they are good and bad days and sometime a gradual build up of
tiredness, so we just do our best to support them. Best wishes
Hi Sandy
The website for Epilepsy Action is : Epilepsy.org.uk. Look at "Get involved" then onto "Local branches and groups". Hope you manage to find a local group from this. I definitely found a group useful for a chat and help with confidence. Also they will have social activities to get involved with.
Hi to All, There are many links for support groups, chat groups and more both on Facebook and Twitter. I have joined about 15/20 Groups on Facebook to find friends, information and knowledge. If anyone wants to make contact please feel free to do so: facebook.com/lesmal, @lesleydonnelly1 (Twitter) or go to my Page: facebook.com/lesdonn
Thanks for the information, I will pass it onto my son, but he still hasn't sorted out
his lap top yet. pauline
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