Heya,
So I had my diagnostic laparoscopy on Saturday and they didn’t find any endometriosis but found mild adenomyosis.
So glad to finally have a diagnosis but I feel like there’s even less knowledge/support out there about adenomyosis.
When i tried the mini-pill last year I feel like it made things even worse so I’m quite stressed that my only real option for the symptoms currently is hormonal.
Has anyone else received a diagnosis of only adenomyosis?
Hey, same for me. Well they found a minimum amount of endo. (Nothing to worry about)The MRI I had with the dye was the best for showing blood filled cysts, along with understanding what was happening inside me.
Its been a very long process over 8 years to be diagnosed , I'll be having an hysterectomy in 2 weeks. Another 2 years to get to this point.
I'm on Prostrap and low hrt at the mo, which has made me feel so much better.
They will just offer you the coil. Which may help just to get a bit of normality. Can't remember the name but the blood thiners may help to.
Unfortunately the NHS is very over whelmed, under staff and I have found very uneducated in this area. You may have an endo specialist centre near you? I didn't realise there were places like this.
I have spent a lot of time researching, paying for private physio, acupuncture and women health physio.
Learning about unbalanced hormones, esp estrogen dominance, learn your cycles, eat healthy, exercise will all play a part.
Sugar, caffeine, veg oils all aggravate me.
Vit D in the morning and magnesium at night, B12 injection every 3 months.
Start slow, little changes helped my mindset. Try to avoid to many pain killers, ibuprofen has ruined my stomach lining.
Try fresh ginger in your diet/tea esp 2-3 days before period, castor oil packs.
Other countries like Oz seemed to be a bit more a head. There is no quick fix I'm afraid but lowing your stress, getting hormones in check will definitely give you strength.
If you need any other help, just message
Wishing you well and strength x
Yeah the gynae that did my laparoscopy was an endo specialist. The first ultrasound scan I had for my periods was 11 years so it took me a very long time to get this diagnosis! I’m 30 so a hysterectomy isn’t an option yet but will definitely be in the future.
I have always thought my hormones were unbalanced but I’ve never been tested, is that something the NHS offers? May have to just do it privately.
Thanks for the advice, will definitely do more research into how i can regulate my hormones naturally and adjust my diet.
I was diagnosed with adenomyosis about 4 years ago via hysteroscopy and MRI. I take methanamic acid (pain killer) and traxanamic acid (blood clotter - to reduce bleeding I think) during my period religiously for 2/3 days to manage pain otherwise I’m in absolute agony, throwing up from the pain and completely immobilised. I’m about to have the medicated coil to try and manage the adenomyosis. I’ve had 3 extremely painful and traumatic miscarriages in past couple of years and I am convinced that the adenomyosis affects my pain In miscarriage but drs have said the link is unlikely. In my experience little is known/considered about adenomyosis. Best of luck x
Yes, an official Adenomyosis result so far via ultrasound.
I was placed on a 2mg progesterone only tablets daily by a woman’s health specialist nurse after over a year of waiting. Took about a month to settle then felt I got some life back, but 9 months later started feeling so many side effects. Now at cross roads trying to decide whether to stop or not, really don’t want to go back to square 1. My next Gynaecology appointment is in April 2025.
It’s hard to navigate isn’t it! I tried progesterone only pill for 6 months last year as a last attempt before my gynae referral and I was pretty much bleeding everyday for months and my period pain was worse so I stopped. I also can’t take any hormonal contraception with estrogen.
The only other option I’ve been told is the mirena coil but I refused it even during my surgery…
Post Lap and no endo found 
No endo found in laproscopy 
Post lap - no endo found
Lap- no endo, MRI- no adeno
Adenomyosis and Endo
