First Gynaecology appointment : Hi there, I... - Endometriosis UK

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First Gynaecology appointment

Sophiemcxx profile image
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Hi there, I am new here. A few months ago I went into hospital with debilitating pains to my abdomen. Finally was referred by gynarcology for a MRI. Results came back showing I had two small Endometriomas and Adneomyosis. They said I would have a follow up appointment in June/July. I have been called up today as they have an appointment tomorrow which obviously I took since waiting since September last year.

Can anyone who had their first initial gynaecology outpatient appointment please explain what to expect? I am so scared they are going to dismiss me. I have waited 8 years to be diagnosed after being fobbed off so many times by doctors saying it was ‘IBS’ which I knew it was not.

I have already a marina coil fitted last year as I read that it could help which it did initially but not so much now with my symptoms. I am constantly in severe pain almost every single day along with other symptoms. I am worried that they will dismiss me as I have the marina coil in and that they will not refer me for a Laprosocopy and give me better pain relief.

Sorry for rambling on, I am just so nervous as I want to be taken seriously and be heard like all of us do. I have heard so many horror stories.

Some advise would be amazing if possible. Thank you :) xx

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Purplebookworm1 profile image
Purplebookworm1

Hi Sophie,

Sorry to hear of your pains and the length of time you have been waiting for an appointment!

I was the same as you many years ago and am now awaiting my 5th operation. You are in a better situation that I was at my first gynaecologist appointment as you have MRI proof and I found the hardest thing was getting them to believe you!

They will more than likely talk to you about your symptoms, maybe do an internal check (lovely I know!) and then they should refer you for surgery if you are happy to go ahead.

I hated the coil and had it removed and will never have it again it made me so much worse ! So tell them that you want to explore other options if you are not happy. I tricycle the pill and found this to be much better.

My advice is to stand your ground and say what you want.

Good luck!

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