I’ve trialed different foods, and whilst soya and dairy cause flare ups, I have also found that not eating anything, or very little, reduces my endo pain.
Have others found similar?
trying establish if there’s something else (not endo) causing this effect.
Obvs this is an unsustainable solution, but it is a curious observation and I’m keen to find out if there is any common experience.
Hi
I found I couldn’t (can’t) eat much when mine really went pear shaped a few years ago and lost tons of weight. I’m still investigating but had lots of Endo and inflammation.
Make sure you take a good multi vitamin and mineral so you are getting a good supply of nutrients. Your GP can refer to gastro and dietician to rule out other things.
Do you know the extent of your Endo?
Glad it’s not just me! This has only become noticeable in the last 6-8 weeks when I’ve had a massive flare up that will not settle.
I don’t know its extent yet, just had another 7month(!!) delay added to my wait for a lap. Gynae seems confident I have adhesions affecting my ovaries and I’ve always had constipation/diarrhoea and what I’ve always called ‘ass lightening’ so feel there maybe some of this also.
Over the last few years, taking Bimuno has helped with gaining more control over gastro ‘events’, but the pain is still present.
Going to try for a referral for a nutritionist/dietician. Thank you!
It does effect others as well, we aren’t the only ones. Stupid disease!
Let them know if things are getting worse and GP can write to them to try and speed it up. I’m sure you will have adhesions, I had them all over. Have you not had an MRI?
I hope pain isn’t too bad. I take Duloxitine, paracetamol, Oramorph and sometimes Diclofenac, think I’ve tried everything 🤣
GP shouldn’t object to doing referral.
They classify endo as inflammatory chronic condition. Nutrition would aggravate the inflammation for sure. I noticed after alcohol and processed foods, I suffer a LOT! It helped me find a nutritionist and work with them 1-1
I have found myself gravitating towards more simple homemade soups and leafy veg. Low bulk, minimal processing.
I take anti-inflammatory meds also, but I’m not a fan of popping pills…… I need to do more anti-inflammatory food reading.
Going to see if I can get a nutritionist or similar to help narrow any aggravators faster than my trial and error.
Thanks!
try reading Heal Endo by Katie Edmonds for demystifying…
Added to my Santa list, thanks!
I've been diagnosed with ulcerative colitis as well as endo and adeno. I did a food intolerance test and have discovered that I'm intolerant to loads of things. I've been eliminating these from my diet for the past few weeks and, although my diet's now really boring, I'm feeling much better. I suffered from terrible bloating but this is easing and I can actually see a flatter tummy beginning to emerge. It's maybe something worth trying.
Hey JEWM I personally found food to be a contributor. I've done a 2-month elimination AIP diet and then started introducing foods one by one slowly to figure out what was triggering an inflammatory response. In my case it was mostly gluten and nightshades to start with.Now nigh-shades seem to be ok but gluten is still a no. Dairy has oddly been fine for me personally. Also I found more frequent meals and smaller portions work best for me.
A relatively straightforward check is for lactose intolerance- If you have a history of UTI’s or uti type symptoms this maybe useful. There is a strong association between Endo development and the presence of Klebiesella infection ( some UTI’s) . A consequence of klebiesella infection is it can alter the body’s ability to manage lactose. So it’s worth a trial . Withdraw all milk and milk products for 48hrs. If you feel so much better then reintroduce lacto free products and check out which dairy foods have lactose in and those that don’t ( it pivots on the whey) so butter, hard cheeses are doable whereas soft cheese, kefir, milk aren’t. Dr Google helpful on this. There are other ways for dairy to be an issue if it’s not the lactose.
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CBD oil? Anyone knows if it really helps with endo pain.
Anyone else feel REALLY emotional and vulnerable after bad endo pain? 
