Advice please: I have had endo for 20 years... - Endometriosis UK

Endometriosis UK

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Advice please

porland profile image
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I have had endo for 20 years, my first operation was in 2003 which diagnosed endometriosis

second operation was after I had all my 4 children which was to remove the endo that was stuck to my bowel.

Third operation 2017 to remove left ovary and tube.

I'm 44 no period for almost 3 months now but have heavy aching pain, feel like endo is back big time 😥😥😥

My question is do you think a hysterectomy is the only solution?

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porland
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AlexaMac profile image
AlexaMac

Hi l cannot give you a clinical answer to your query, l can only relate my experience.

I had partial hysterectomy December last year and the completion March this year due to cancer being found.

I hope one of our younger friends writes to you as l am 77 so my journey has been very much post menopause, however if you would like to write to enquire about preparation or any worries l will check back here for a chat.

Wishing you well on your journey back to health.

Alexa 🌸🌸

SeventeenNineteen profile image
SeventeenNineteen

I also can't give clinical advice, but have you been offered any hormones ie "minipill"/Mirena or the menopausal ones?

This might be what they suggest to do before suggesting a hysterectomy and for many people this can help.

Sorry to hear your suffering and in pain after feeling better for a few years. It's a really cruel condition and unfortunately even after hysterectomy for many the symptoms do not entirely go away.

Best of luck with managing your symptoms and I hope you can speak with your specialist about what other options you may have.

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