Working with Endometriosis and Adenomyosis.

[Rwby_Rose]

Hiya,I am experiencing alot of problems in regards to my Endo and Adeno.

I am currently working at the moment in a nursery. I have gone from 4 days to 3 days and I am still struggling.

Not only is the pain constant but I get flare is which cause me to be unable to move.

All this means I am having a hard time going to work with constant sick days.

It doesn't help when you are constantly feeling like you could loose your job at anytime.

The last time I was off the manager informed me that she was going to tell the director.

All this added pressure is really not helping and I don't know how to cope.

Is anyone else able to work, if so do you have any tips?

If not, how do you manage to cope?

[Hidden]

so sorry you are going through this, it’s a bum deal to be dealt for sure ☹️

I bled constantly because of my Adenomyosis for 3 months, some days the pain was so horrific I really thought I may end up in hospital. I done a lot of research on my good days to see if there was something that may help me. I started daily to take some supplements: DIM, calcium d glucarate and curcumin.

Now it could be a total coincidence but I think unlikely seeing as I was in such a mess but after about 10 days my bleeding has stopped (praying this continues as was soul destroying) and I have no pain.

I have also pretty much cut sugar and caffeine out of my diet (not easy as I’m a sweets fiend) and trying to eat organic where possible.

This method may not be up your street but thought I’d share in the hope it may help you. Anything is worth a go right!

Good luck, I sincerely hope your health improves. It’s bad enough without all the work pressures that come from it.

Take care xx

[Rwby_Rose in reply to Hidden]

Thanks hun,

I will definitely keep that in mind.

Glad to hear yours is better than it has been. 😊

[Cailleach]

This is a really common issue for people with endo (and other chronic illness and disability). Of course employers want to know that they have staff who are reliably able to work. I have had the same issues myself in the past with having to take a lot of absences.

There are a few things you can do with regard to work. Make sure your manager understands the reason for your absence, to the extent that you are willing to discuss, but certainly so they know you are doing your best to be at work.

If there is a trade union covering your workplace it could help to talk to them for advice and see if they can come with you to any formal meetings that may be arranged in the future. If you don’t have any union, the TUC could advise you of local contacts in the most appropriate one, but if they are not recognised by your employer they may not be able to come to meetings.

Ask if your employer has an Occupational Health service ( even small employers mays be signed up to one) and ask if you can have an assessment. This can help in confirming that you have a genuine health issue and discussing if there is any way the employer can help you.

Think over yourself if there is anything that would make it easier for you to work - changes in hours, shift patterns, duties, are examples, and discuss it with your manager.

Make sure you know their policies on Sickness Absence management so you can ensure they follow them. The Citizens Advice Bureau and ACAS are also a good source of information about employment rights.

Are you being seen at Gynae or waiting on treatment? If not, see your GP and ask for referral and for help with pain relief in the meantime. It can help to be able to tell your employer if there is a prospect of the situation improving.

As I said before, this is sadly such a common issue for people with Endo, especially with longer waits for appointments and treatment now. I hope that this will be of some help to you xx

[Rwby_Rose in reply to Cailleach]

Hiya,Thanks for your support.

After being pulled in to an informal chat with my manager, I have bought some of your points. I hope this helps in the long run. 🤞 🙂