Has anyone done IVF and been told their e... - Endometriosis UK

Endometriosis UK

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Has anyone done IVF and been told their eggs are destroyed?

kayray87 profile image
11 Replies

Hi everyone,

I've just been told it's highly unlikely that I'll have children after over three years of trying to conceive and multiple failed IVF cycles. Apparently my eggs are falling apart and they can't even fertilise them with ICSI in the lab. I'm 35 and told this shouldn't happen at my age but no doctor can tell me why it's happened. I've read multiple stories about infertile people having silent endometreosis and it's been niggling at me and wondering if this could be the reason. Has anyone on this community experienced anything similar? I may just be clutching at straws at this stage. I've had scans where nothing shows up. Laparoscopy seems like a very big step to take to know for sure.

Thanks in advance for you help ❤️

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kayray87 profile image
kayray87
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11 Replies
Elsidee11 profile image
Elsidee11

hi kayray, so sorry to hear this is happening. I have endo, was diagnosed with stage 4 18 years go (I am now 35) - my amh is healthy for my age but on my first round of ivf I produced 6 eggs, a lot less than expected from 14 follicles. So potentially? I haven’t heard of many Endo sufferers with completely diminished eggs - although I know the toxins from Endo can be harmful to the egg, you should absolutely be able to improve this if you are actually producing eggs?

There is a endo specialist in the south west and he is particularly expert in the diagnosis (including ultrasound) of endometriosis. Not many doctors can diagnose via ultrasound but he is one of the top dogs! If you want I can inbox you the details.

Hopefully this helps and I wish you well on this journey xxxx

kayray87 profile image
kayray87 in reply to Elsidee11

Hi Elisidee11,

Really appreciate you replying, thank you for all the advice.

My AMH is a little lower then it should be but I have a good antral follicle count and have got 8 eggs from first two rounds and 12 eggs from third round. Problem is extremely bad quality. Similar to you I had 17 follicles on first round but only got 8 eggs. That is interesting about endo affecting the quality. Yes, please could you send on their details? Willing to try anything at this stage!

Wishing you all the best for whatever stage you're at ❤️

Elsidee11 profile image
Elsidee11 in reply to kayray87

sorry to hear 😞 can only imagine how devastating it is going through a full cycle of drugs and then receving that news - I felt the same when we had the call to say only one of my eggs fertilised normally. It’s a bloody cruel journey. I’ll inbox you the details of the consultant - it’s worth a shot, I know laparoscopy’s are expensive and the wait list is long for nhs so might be worth having a consultation. Good luck xx

kayray87 profile image
kayray87 in reply to Elsidee11

Cruel is a good word for it. So sorry to hear that you've had those similar awful phone calls 💔

Laurapax profile image
Laurapax in reply to Elsidee11

Hi there Elsidee11 and @kayray87 I hope you are doing as well as can be. Sorry to jump on your thread but I came across your posts and in a similar position - suspected endo, started ivf low egg count in first collection. I’ve also previously suffered two natural miscarriages which kicked off this whole sorry journey. Would you be able to share the details for the endo specialist with me please? I am having a pelvic ultrasound on the nhs this week but believe I need more thorough investigations. Thanks so much sending hugs xx

Elsidee11 profile image
Elsidee11

southampton.ac.uk/news/2016...

kayray87 profile image
kayray87 in reply to Elsidee11

Wow this is so interesting as I've had problems with a lot of the eggs not being mature. Thanks for sending, I feel it's something I definitely need to look into

E-ZEE profile image
E-ZEE

Scan can't find endo.However you can go for a MRI for diagnosis,mine was diagnosed in MRI.Also,just a diagnostic laproscopy is not a big deal,u can also consider it.

kayray87 profile image
kayray87 in reply to E-ZEE

Thanks E-Zee for the info, appreciate it 😊

ccfd9 profile image
ccfd9

hi, I know that Dian Shepperson Mills has help numerous women similar to you have children. Obviously no guarantees but nutrition can help with lots of issues with your health. makingbabies.com/

kayray87 profile image
kayray87 in reply to ccfd9

Thanks ccfd9, I will check it out!

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