Utrogestan: Has anybody found this helpful... - Endometriosis UK

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Utrogestan

Slinks profile image
20 Replies

Has anybody found this helpful for endo? I cant seem to tolerate the progesterone only pill, too many nasty side effects. TIA

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Slinks
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20 Replies
MyStar86 profile image
MyStar86

I had to have a radical hysterectomy last year so I was given utrogestan but I didn’t get on with it as it caused me lots of gastro issues so I stopped it and take my old contraceptive pill femodette along with hrt. I didn’t think they prescribed utrogestan if you are not In menopause but I could be wrong.

Slinks profile image
Slinks in reply to MyStar86

I was prescribed Norethisterone and made me feel so ill so stopped it. No they dont but I am perimenopausal anyway so got HRT but not tried it yet. Was just wondering if it helped endo pain for anyone

AmuP profile image
AmuP in reply to MyStar86

may I ask what type of gastro issues it gave you? Because I think I’ve developed some too

MyStar86 profile image
MyStar86 in reply to AmuP

I had loads of gas, cramping and diarrhoea but the gas and cramping was awful it drove me insane. I tired really had to keep taking it but it just wasn’t for me. How are you finding it?

AmuP profile image
AmuP in reply to MyStar86

I’ve been taking 100mg for 2 weeks but haven’t found any difference in pain level yet. I have gastroparesis so I’m finding that’s a bit worse and I always get bloating and cramps so haven’t seen a difference in that. But I’ve asked if im able to take them vaginally to see if that will reduce symptoms

Slinks profile image
Slinks in reply to AmuP

My doctor won't prescribe them vaginaly even though I know they can be used that way, she says it's not licensed

MyStar86 profile image
MyStar86 in reply to AmuP

you said you had developed some gastro symptoms what did you develop? I didn’t know they could be taken vaginally maybe that can only be prescribed by a gynaecologist or a menopause specialist then the gp can prescribed once it’s come from a consultant. Worth a try to get a referral

Slinks profile image
Slinks in reply to MyStar86

Just spoke with nurse practitioner and she's finally got me an appointment with a doctor so the GP can refer my back to gynecology. Round and round in circles

MyStar86 profile image
MyStar86 in reply to Slinks

im glad you have the ball rolling at least and hopefully you don’t have to wait too long 🙏🏻

Slinks profile image
Slinks in reply to MyStar86

Hopefully but not holding my breath, been here before just keep going in circles with it

Slinks profile image
Slinks in reply to AmuP

Just generally an upset stomach and felt really sick

Dimah profile image
Dimah

Yes!!! Completely changed my life. I suffered from other progesterone pills and have other medical complications so options were really low and the specialist said we can try Utrogestan although it's usually used as part of an HRT package. No more low mood from the pills, no period, pain kept mostly at bay. Know that it's not a contraception though. Good luck

Slinks profile image
Slinks in reply to Dimah

Thankyou that's really helpful. Can I ask what dose you take? Think I'm going to try these as already have them anyway because boy I'm suffering menopausal symptoms badly also

CofG profile image
CofG

Hi Slinks. Yes! Totally helped me keep the endo dormant. I have menopausal symptoms too which is why I tried adding the Oestrogel after taking Utrogestan for 3 months and it was with the Oestrogel that the pain flared up again from the only ovary I have which developed 2 new endometriomas after my total hysterectomy in 2019. And along with this pain, my IBS flared up too (painful and embarrassing and uncomfortable wind mostly) with no matter what I eat which is really getting me down. So I stopped the Oestrogel but continued with the Utrogestan and the pain from the cysts ceased again but the wind seems to be persisting. I think the IBS is linked to the inflammation from the endo rather than the Utrogestan or a side effect of Oestrogel... I am trying to seek advise to see if I should increaso Utrogestan to 200mgs instead of 100mgs to see if that stops the endo from flaring up as I need the HRT. Oestrogel was causing dizziness also but I was feeling much better mood wise and my memory and confusion and fog seemed to be improving too along with my joint pain and tiredness and stiffness. I get lower back pain the minute I stop Oestrogel... even my skin was more younger looking! hope this helps... how are you getting on?

Slinks profile image
Slinks in reply to CofG

At a loss at the moment. I don't have endo diagnosed but have alot of pelvic pain continuously. I saw a GP only this morning who wouldn't consider referring me back to gyne and even suggested my pain was in my head and it can't be endometriosis because of my age (46) and even if it was it would get better with menopause which I understand is false. Ive just put a complaint in to NHS England as just going round in circles and te pain is ruining mine and my husbands life. All she suggested was the mirena coil which I dont want. I think they should be taking me a bit more seriously and at least do MRI to see if anything can be seen but just always come to a dead end. I feel so deflated and 😡

CofG profile image
CofG

oh... I thought you had an endo diagnosis. Mine was discovered during my hysterectomy 4 years ago. I had had horrid IBS that kept getting worse and the uterine fibroid and a big ovarian cyst which happened to be an endometrioma when they went in.

So sorry to hear they won't do an MRI because they can often see it on an MRI. They keep an eye on mine with MRIs. You might have to go private :(

Slinks profile image
Slinks in reply to CofG

No unfortunately I just keep getting fobbed off they won't even look into it. Going private, for me, is not an option theres no way I could afford it so will just have to keep going back

CofG profile image
CofG

You can insist. They have to see to it. There are endometriosis guidelines that apply if there is suspected endometriosis. There is a facebook group called EndoRevisited that is very good for this kind of things. They know all the legal frameworks and guidelines. I would ask there too...

Slinks profile image
Slinks in reply to CofG

Thankyou I will have a look at the group

Efka profile image
Efka

Hello, apologies for late reply I've only just joined. I have taken 200mg Utrogestan at bedtime for a couple of years now for endo and it has reduced my pain to almost nothing (I have some endo in my groin/gut etc). I have had no side effects from Utrogestan but then I'm sure my estrogen/progesterone balance is very off so might be why?! I'm even considering upping it to 300mg for a trial as my endo is still progressing. Best of luck