How long did it tak for hospital and gp to take endometriosis seriously?

[nikkimatt2019]

Im constantly being fobbed off they ain't doing anything about my endometriosis I have. They keep giving mixed messaged and diagnosing me with diffrent health problems saying it ain't to do with endometriosis this is the message they have put to me I havent went hospital as I'm scared because they keep robbing me of lying and giving mixed messages I'm scared for my life not knowing what's what no more barred constantly in pain and bleeding heavy bad and nerves server with pain everywhere from my legs,stomach sides and up to my ribcage pain none stop. They are trying to also force me to have coil I said no many times as they once before tried putting it in me behind my back. This was what they said problems could be and they are concerned. Has anyone else had this problem? Has anyone else been fobbed of to many times? Or constantly wrong diagnosis with no proof? I was told also they are ment to sort out to see how far endometriosis is spread in body but also getting refused for operation saying it's a waist of time and wont work.

[Moon_maiden]

I’m so sorry you’re contending with so many bad experiences.

Don’t be scared of going to the hospital, take someone with you so you have back up. It’s much harder for them to ignore anything with someone there.

Your post explains quite a bit, use this as well in going to your GP. They have a duty of care in helping you to get well.

The best way with the GP is to use the econsult form on the website to get an appointment.

What your GP said about going to the hospital might be correct, we can have have more than one condition and unfortunately others seem to go with Endo. The symptoms you have could be with anything it has to be investigated and if you have painful periods you’re likely on the right track. Never forget you know your body, they don’t.

In the last three years I’ve had various diagnosed. It’s so important to speak to the right doctor GP or hospital.

The aim should be your GP refers you to a Gynae, you can pick your hospital and that includes private doing NHS appointments. I’d thoroughly recommend this path, the easiest I had with carpal tunnel so far. Often quicker as well, plus treatment is there as well. You should request an MRI, GP can arrange this, Gynae should as well. It’s the best scan to rule out things, include abdomen as well. GP will want to start with an ultrasound, might help with somethings.

More than happy if you want to show your GP my response and I’ll add to it if you want any more info. I think I’m going on too long now 😂 sorry about that.

Last quick thing we pay (at least I did, still would if Drs got on with it) the NHS isn’t free and whilst they waste appointments they are wasting your money, and theirs. 🤷‍♀️🤦‍♀️

Please ask anything if you need to

[nikkimatt2019 in reply to Moon_maiden]

Hi thank u for your reply. It's been hard they hace been neglecting me for a very long time I've also got an advocate involved which they are helping me do a complaint and also they are gonna speak to them on my behalf the advocate said if we dont get anywhere then I will have to take it furture. I will be going hospital next week and hopefully they will do scans and blood tests also. Thank u same to u if u need to talk message me. If you could give me more advice I will let u know what happens

[Moon_maiden in reply to nikkimatt2019]

It’s incredibly hard, great you have some help. We all need that at times.Even better you have the hospital appointment next week. Write all your symptoms down, so you can take a few days to add if need be and take it with you. We never think of everything at once.

Do you have someone going with you to the appointment? We get to the point it becomes harder to say things and comes out wrong. Having it written down it becomes more of an agenda and points to cover. They can read it and digest. Tell them you have trouble remembering all the info if it’s not written down, anything so they can digest it properly. Include how you feel, how your life is damaged by the pain.

Blood tests probably won’t help, nothing ever showed on mine. Scan definitely, MRI though, unless they have someone who knows what to look for on ultrasound. Some do these days. Add scan to the list.

The Endo uk site has great advice for consultations, well worth a look.