UTI?

[Greeen1]

Hi, anyone suffer with UTIs? Or similar symps? Is it endo?

[Perla19]

Yes, I frequently get UTI-like symptoms caused by endo. You should get your urine checked though by the GP, just to make sure it’s not an infection. Hope you feel better soon x

[Greeen1 in reply to Perla19]

Thank you and thanks for sharing. Hope you’re well x

[LottieHarrison]

Hi there, yes, I do! It’s agony, I get the Endo pain under control and then the UTI feeling comes 😞. I try to put a hot water bottle between my legs to help, not glamorous but helpful xx

[Knitting_Kitty]

Hi, yes all the time. Esp around my period. I can be up 5/6 times a night for a wee & have full aching stabby pains on one side. Would often get wee checked by dr to be told no UTI. I’m now almost 4 weeks post and been diagnosed with endo. So yes it is poss it could be endo definitely. See your GP. All the best. X

[vb90]

Yes unfortunately… Surgeon didn’t find endo on my bladder but said it was inflamed. Most likely interstitial cystitis which is known as a sister disease of endo , it is so so painful. If I could feel my bladder starting to flare I found the best thing was try to rest limit movement and hot water bottle between legs or sometimes even a cold ice pack would bring great relief! Also I would sit in the bath just so I could relax my bladder when feeling like needing to wee constantly.Mine (touch wood) settled since having my little girl but do get checked for UTI just in case - I didn’t bother once, as I was expecting it was my usual flare but turned into a kidney infection from an untreated UTI - whoops!! 🙈

[DalmatianGirl]

Hi,yes I do! I get UTI symptoms but there is never an infection - I was diagnosed with endometriosis a few weeks ago post laparoscopy. As others have said, interstitial cystitis and endo often go hand in hand!

[Lewi18]

I’ve been having infections for around 20 years and have only recently been diagnosed with pcos and endo. I never knew the uti symptoms could be the same as endo symptoms!! I’m so glad I saw this post. A few times I thought I had an infection only to be told the urine test was clear. I’ve not once been told it could be endo symptoms. I don’t know about others experiences with doctors and nhs but I haven’t found mine very helpful at all.

[Bigsize9foot]

I recently had my first experience of this. I’m not sure how long I’ve had endo as only diagnosed from an endometrial cyst about 3 years ago.

Had to go to the toilet every 10 mins or so. Painkillers helped as did plenty of water and also a hot water bottle. I didn’t have burning when I peed but burning afterwards? I’ve not had it since.

I think the anxiety of wondering what it was was worse than the UTI symptoms.