Treatment options

[Abz81]

Hi all

Has anyone found any treatment that helps with symptoms long term?

Or is hysterectomy best bet?

I have just finished 6 months decapeptyl inj can already feel some of my symptoms coming back

Thank you in advance for any help or advice

Or even if you tell me what your treatment story is

[USgalwthendo]

I had surgery to remove endometriosis about 8 years ago. It was a robotic minimal invasion type surgery. Found to have stage 4 endo. I have not done anything else since then as far as symptoms go I take ibuprofen I use a tens unit and heating pads and rest. My symptoms returned a month after surgery. I don’t want to keep having surgery unless absolutely necessary. It does not seem to help every case. I’ve heard hysterectomy doesn’t cure endo. But again it may help some folks and not others. I have basically approached my situation as a grit my teeth and bear it approach.

Medication:The one change I made recently was starting citalopram an anti anxiety antidepressant med that helps modulate pain response as well. There are other similar meds that help in that fashion. I became depressed after years of battling this illness. The citalopram helped me feel good again within 8 weeks. I still have pain but I can handle it so much better.

Nutrition: I haven’t started yet but will soon begin a diet change. I am also being worked up by rheumatologist for a joint condition and she told me that lots of endo sufferers also have gluten sensitivity. So I plan to try that next so it may help with pain reduction. It’s a little tough now as I’m dealing with overlap in autoimmune conditions but the joint pain is not endo. However my fatigue is part endo and part joint condition.

If I can get the pain minimal and get my energy back I have no plans to get further surgery and will just go with symptom management for life.

If I have any luck with my diet I will post on this site in a month or so. You will find a lot of helpful advice on this site. I also seek out latest endo research to stay on top of any new treatments.