Zolodex and endo - side effects? - Endometriosis UK

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Zolodex and endo - side effects?

Bdhakq profile image
4 Replies

Hello. I have recently had a laproscopy, appendix removal, d/c, ‘freeing’ of my ovaries (fused), hysteriacopy and a mirena inserted. It was my first surgery abs I have been very blessed to have had 3 children, unassisted. I have suffered severely for years though with crippling pain. I have had one zolodex injection, and am due for my second next week. Initially I had 24hours of severe anxiety and ‘crazy’ and then it calmed down. I have had a period now for 7 days, and it’s been heavy and painful. I have had a constant headache since then abs it is beginning to affect my daily functioning. The last 3 days I have developed crippling joint pain, I almost dropped my 2 year old my wrists abs elbows hurt so much. I am hobbling round like an older lady. The doctor says this isn’t an issue. I am not convinced - and I am not looking forward to 6 months of this if it worsens. I have 3 kids under 5 and my eldest is about to start

School. I was prepared to be feeling better, not like I’d been hit by a truck - seeking others experiences and advice

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Rjb_88 profile image
Rjb_88

Are you on HRT yet? If not, request it and preferably in a patch you change twice weekly as I found that helps a lot more with the side effects. Naproxen is also good for joint pain and lots and lots of water! I also take magnesium, riboflavin and feverfew to help with the headaches x

Bdhakq profile image
Bdhakq in reply to Rjb_88

Thanks for replying b_bart88. Yes, on daily HRT. I had 4 litres yesterday .... hoping it would improve but sadly not. Each day is worse! I had forgotten about magnesium. Thank you! Hoping it’s worth the pain, at the moment it’s almost worse than the endo.

Rjb_88 profile image
Rjb_88 in reply to Bdhakq

I’ve found the aching and painful joints the worst side effect, I do find that naproxen is really good and a HRT patch instead of tablets. I have a nearly two year old and like you, some days I couldn’t even carry him because I just felt like I’d collapse!

Bdhakq profile image
Bdhakq in reply to Rjb_88

Thanks so much, I’ll definitely ask about the patch. It’s so tricky, I have a 3 abs 5 year old also I feel like I’ve not been able to do anything this week. It’s just awful

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