Possible Endometriosis Diagnosis.

[Floss_28]

After 11 years of constantly asking doctors for help, I have finally been referred to a specialist for endometriosis and been told to prepare for a laparoscopy.

At first I felt so relieved, like a weight had been lifted off my shoulders. I cried my eyes out on the phone to the doctor when she told me, she said she definitely believes I have endometriosis and explained the procedure and everything. But now after a few days I'm really worried. I'm doubting all of my symptoms, like was it really that bad, am I just being over dramatic (I'm not, my boyfriend can attest to that) and I'm worried I'll have the procedure and they'll find nothing there and the last 11 years will be for nothing and I've just drawn an extremely short straw and have to deal with horrific periods and constant pain.

I'm really scared and worried that I'm just wasting everyone's time. Does anyone have any advice or tips on how to ease my worries whilst I wait for my appointment?

[luli26]

Hi there - I can completely relate to what you are saying being in the same boat myself and experiencing the same thought pattern. It's particularly difficult at the moment to distract or distance yourself from the pains and the worry about the lap. There's not much other than the 4 walls to take us out of it! Sometimes it's just about making the conscious decision not to think about it - but that is easier said than done. I think that viewing the lap as a means to diagnosis is the most positive thing rather than it representing the golden bullet or cure. In any case, you are not wasting anyone's time and this is something that needs to happen so you can at least know for sure what you are dealing with (or not). Take away that negative voice that tells you you're imagining it - it's highly unlikely you are. I would then suggest doing something each day that takes your mind off revisiting it - maybe a walk or reading or writing or creating something. I find cooking can be a good activity. Listen to things that make you happy or that distract you or find something on Netflix to lose yourself in. Be kind to yourself and try and hold on to the hope that this will be the first step to addressing your symptoms and feel empowered by that. This is what I am trying to do; some days more successfully than others! Good luck x

[Floss_28 in reply to luli26]

Thank you so so much for the reply, I really appreciate all of the advice, thank you 🥰

[Moon_maiden]

It won’t be a waste of time either way, it’s the only way to know for sure. If the consultant is endo specialist he’ll have a pretty good idea. It’s great you got somewhere with GP 🙂You aren’t being over dramatic, this condition and others in the pelvic area are evil critters for pain 😆.

Pain is because something is wrong

I had doubts before lap, but I really needed to know one way or there and unfortunately there is only one option. I was having doubts about next op, but that soon changed after doing some cleaning over the last few days.

As things crop up jot them down, then you’ll be able to sort them and have notes at the consultation. The endo UK site has great info about consultations.

[Floss_28 in reply to Moon_maiden]

I feel like a bit of a fraud because other people have it worse than me from what I've read online. My boyfriend says that nonsense and I need to get it checked out, especially as we want to start to plan for a family but want to make sure everything is okay first.

Have you had a lap? How was it?

Thank you for the message💕

[Moon_maiden in reply to Floss_28]

You really aren’t a fraud, just thinking normal things 🙂 your boyfriend is right, he sounds very sensible. I had a lap in Feb, first op, I did end up selling some bits as paid for it. I didn’t know if he was correct or not, but needed to know. I’ve another op but on NHS. I have Fibroids as well so it’s all going. I’m of an age where technically menopause could have hit but hasn’t.

[Floss_28 in reply to Moon_maiden]

Hahaha he is some of the time 😜😂Oh bless you, that sounds tough!