Just been giving an appointment for Monda... - Endometriosis UK

Endometriosis UK

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Just been giving an appointment for Monday and I feel like I've won the lottery 🤞🥳

Thecrazypugglelady profile image

So with everything failing I'm finally getting an appointment in less than a week! Never been so excited my belly has doubled and I now know it's definitely food and drink for sure! It has got to be movement! Hopefully my surgery will get done a lot sooner than a years time! 🤞

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Thecrazypugglelady
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Moon_maiden profile image
Moon_maiden

👍😀 make the most of it and don’t let them turf you out without getting all the answers you can 😀

Thecrazypugglelady profile image
Thecrazypugglelady in reply toMoon_maiden

Thanks 😁 oh I won't do dont you worry Haha me and my diary won't allow to be fobbed off no more. I've done a video diary too 😊 hopefully I wont need to use that though haha

Moon_maiden profile image
Moon_maiden in reply toThecrazypugglelady

Let us know how it goes. I can picture the consultants face with the video diary 😂

I seem to be struggling to get a private appointment to go over questions I’ve thought of. Supposed to hear back last week, then bank holiday, left message today, 🙄. Plan B maybe?

Thecrazypugglelady profile image
Thecrazypugglelady in reply toMoon_maiden

She already dreads my face hahahaha

Ohno really?!!! I just keep phoning daily or if they say they are getting back ring in the afternoon. It sounds intense but when your in pain it's not funny. I know I emailed eventually to say I'm desperate and il try anything as I've had enough and dont want anymore injections! They dont work 😔 so if you can find an email address I would because it's in black and white

Moon_maiden profile image
Moon_maiden in reply toThecrazypugglelady

Same with GP 😂, they’ve probably started picking straws when they see anything from me 🤣🤣 if they stopped screwing up it would help

Tried emailing the week before, no response 😂. If I can’t get to ask him the questions I’ll go elsewhere. There’s another specialist at a different hospital. Both are around the same distance. I don’t really want to start again, but I don’t want someone cutting in if I can’t be sure they are going to cover everything that’s needed and outcome. This is the second and last time 🤣

Thecrazypugglelady profile image
Thecrazypugglelady in reply toMoon_maiden

That's the thing is starting again and them saying oh it's not endo ...5 years down the line it is! That's why I've stayed put and just keep chasing and yes your right you have to constantly check that it's right because if you dont you wait for nothing. I suppose lockdown has caused a lot of people to go private I hope you get through to them though! Definitely needs to be more specialists!

Moon_maiden profile image
Moon_maiden in reply toThecrazypugglelady

I’m lucky (sort of 🤣) that gynaecologist diagnosed endo first time I saw him. Lap confirmed and he treated what he could get to and now passed to endo clinic. Now it’s a different consultant and not sure about him. I’ll call again in the morning. If no response I’ll get in touch with the first guys NHS secretary and check he can’t do hysterectomy and any more endo.

If you let them forget you, they definitely will!

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