TMI: I'm back with more symptoms... - Endometriosis UK

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TMI: I'm back with more symptoms...

SufferingSilently9 profile image

Hello,

After a while off this site I'm back. Still no diagnosis and all appointments cancelled for foreseeable future but still fed up of being in constant pain. Just looking for anyone with similar experiences and how they helped it? Has it been endo related and has a doctor helped. Here we go:

Recently I have discovered that my symptoms of pain and newer symptoms have greatly impacted my sex life. Not only is my sex drive lower than it's ever been (and I'm living with my boyfriend who I truly feel for as I must be making him feel so rubbish...) but I have also discovered that when I even attempt sex, I have 4 different reactions and can't seem to find a link to my cycle or anything else..

The 4 are as follows:

- I feel fine and think "wow, for once I'm not in agony during sex" then I bleed everywhere

- I can't even get a fingertip inside without screaming it's so painful.

- I feel like it might start working during foreplay then end up with horrific (and visible) stomach cramping that contorts me

- I can't feel anything at all. Like not a thing, no stimulation, no pain, nothing.

These are starting to have detrimental effect on me as I know something is clearly wrong and don't get answers. When I've brought up the pain before to a GP they've said its likely due to either lack of lubrication (incorrect) or an STD/Infection which I've been checked for multiple times and don't have.

I wish I could enjoy and find pleasure from it but I don't and the rare occasion I do I know that it's going to bleed.

Hope you all are staying safe and are feeling alright as can be.

A xxx

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SufferingSilently9 profile image
SufferingSilently9
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4 Replies
plotments profile image
plotments

Hi its so frustrating when you waiting to be diagnosed and even more getting treatment sorted. Have you looked at symptoms for a cervical erosion a friend had this and she had similar probs with sex

hope this helps take care

Dartmouth93 profile image
Dartmouth93 in reply to plotments

My friend also had similar symptoms which was caused due to cervical erosion..she had a procedure called cold coagulation I think which was a year ago now and is on a different pill and she’s a lot better now x

SufferingSilently9 profile image
SufferingSilently9 in reply to Dartmouth93

Oh, I shall look it up. I haven't looked into that and doctor hasn't mentioned it when I've previously brought up bleeding so I'll bring it up next time, thank you x

Brambledoggy profile image
Brambledoggy

I feel for you. I stopped having sex due to the pain. With me I felt bruised the day after. Pain during, but worse the day after. Sometimes the sore bruising and dull ache lasted for days. Not worth it. My relationship ended. Not because of that. He was violent and moody and selfish! You’re not alone. You need support. And there’s plenty of it on here. Stay strong.

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