*Senstive topic* Pregnancy after excision surgery and still on high dose pain meds. Doctors not helping.

Hi all, I have been blessed to become pregnant prior to our planned start to IVF. We've had multiple miscarriages over the last 4 years. I had excision surgery again recently and it did not help my pain. In fact it seemed worse. The pain team put me on high dose Oxycodone. Most recently increased it to just over 100mg per day. My plan was to slowly decrease by next year for IVF. Last week I discovered I was pregnant. I've spent the week trying to get the pain team to see me. Same for GP. GP refused to see or speak to me or prescribe me lower dose meds saying I've had enough this month. Clearly not understanding I wanted a lower mg not a higher one. The pain nurse ignored me all week. I spent 4 days talking to the receptionist who said to call back. Every time I'd call back she'd say the pain nurse would return my call the next day. Eventually yesterday they had a meeting about me. I called to follow up and the nurse had gone home for the day and not bothered to call me. I cried to the receptionist explaining I just want my GP to give me a lower dose medication so I can wean off. She refused to tell me what was said in the meeting. Said I'd get a letter sometime next week. Eventually after me crying again she agreed to call my GP and leave a message explaining what had happened at the meeting. I followed up with my GP. Around noon yesterday. He never got back to me. So basically I've been left another week to keep taking dangerous meds without any plan to stop. I have started skipping doses to try and reduce the amount. I don't know if this is safe. All I wanted was a plan from the doctors who have been prescribing these meds for over a year now. I need to wean myself as I'm definitely physically dependent on them after years of use. This pregnancy is so so precious and I feel like not one of the professionals suposed to help me actially gives a damn about it. I'll never forgive myself if I have another loss. Who can I ask for help? I don't know what to do.

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And a midwife will not entertain me until I am 12 weeks. I am under the care of the early pregnancy unit who have advised staying on the meds until I can get specialist review.

[Hidden]

Your words are very cruel. Very cruel. To say this is why my GP. Won't help me. You are very very cruel. Please do not reply. I am disgusted with your responses.

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You are acting like a cruel bully. Please leave me alone.

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Thanks I will definitely follow up with this. I've read a lot about this and while there's no certain proof it helps there is also no evidence it is harmful

[Afrohair]

Thanks Hun x

[1yearwed18]

I really hope the lady of the original post gets the help and support she needs. My heart really went out to you reading your post. I hate how endo affects so many things in our lives. Totally understandable that you are just trying to do what it right for both you and your baby. I wish you a healthy and successful pregnancy.

[Hidden in reply to 1yearwed18]

Thank you. It really been a terrible few days since I found out. So overjoyed and so scared. Today has been a terrible high pain day. I've started to drop the meds significantly and really feeling the pain. I wish I was one of the few who's endo went away when pregnant. If this pregnancy lasts I'm in for a rough few months. At least there will be a miracle at the end of it. Thank you so much. I appreciate your kind words

[Lewisisgreen in reply to Hidden]

I just wanted to say that I really get the help you need. I know how my obstacles can be in the way of truly being heard. The last thing you need is more stress now.

Is there any other GP at the practice you can speak to about this? Its really concerning that they are not able to help you with the meds reduction so far.

I've had to deal with specific medications reductions myself without support from the GP so I know how stressful it can be.

Sending loads of good thoughts to you!

[Hidden in reply to Lewisisgreen]

Oh wow thank you. Its so hard to explain to people who have not been on long term meds and who have actually decent GPS. It feels like no one is listening. I'm calling the fertility and pain team tomorrow. Will try and get something in play. I'm really very unwell today. Can barely stand up. Pain is so severe. I am just so stressed and torn between being able to move and protecting my pregnancy from har.. Thank you for your reply. It helps to know its not just me that's been in this position

[kmruiz6]

the thing is you cany just stop taking these meds my advice would be to find a specialist that can help you Taper off im sending prayers 🙏💕

[Hidden in reply to kmruiz6]

Yes exactly. It's dangerous. But my pain doctor basically wrote a half effort letter with no plan saying to taper off but no guidance at all. I'm going to call the patient liaison team tomorrow and ask to be seen. They are the ones who have gotten me on these crazy high doses telling me it would help and every time I went back they asked me to wait it out and increase the doses. So I'm here now waiting to be seen at a specialist pain clinic next year but I need a plan right away to get started. I've tried to drop the doses and can feel withdrawl due to being on them so long. And severe pain too. I don't mind being in pain for this reason. I just don't want to risk the pregnancy and need help to taper properly