Adenomyosis, anyone familiar with this?

[HannahGreen]

Sorry if this isn't allowed but I have just seen an article posted about this condition, in the article they referenced it as being relatively unheard of and is often mis-diagnosed as Endo or PCOS.

Alot of the symtoms that were described by the 25 year old (that is important) we're directly linked to my symptoms and is literally everything I had mentioned to my doctor. I had an MRI last Thursday which a few people have said was quite rare in Endo cases but I'm not sure how true that is, however, one of the common investigations for Adenomyosis is an MRI, I'm wondering if my gyno/go is already thinking that this is what I have?

Does anyone have any experience with this? What I loved about the article was that it credited all the awareness there has been around endometriosis which is helping more and more women!

[AllthatGlitters]

Hi Hannah, yes I got diagnosed with adenomyosis via MRI. Previous to this I had a CT scan and ultrasound scan which showed up nothing. It was initially thought that I had Crohn’s disease but then it showed up adenomyosis.

I have even told by the surgeon that both conditions are very similar in symptoms as they were sure I had endometriosis too. When will you get your results?

Mine took 8 weeks to come back but then it was over Christmas so holidays would have been the reason this took longer. If they find anything I assume they will call you to come into your GP surgery to discuss your results.

[HannahGreen in reply to AllthatGlitters]

I have also had ultra sounds where they couldn't find anything but my GP has said from the beginning that she thinks my endometriosis was in my back muscles which is exactly what adenomyosis is from what I read. I'm currently on prostap injections and tibolone for another 8 weeks so my gyno was wanting to make an appointment for a review of MRI and end of treatment at the same time.

What treatment are you on if you don't mind me asking? Has it helped?

[AllthatGlitters in reply to HannahGreen]

I have adenomyosis and found out I don’t have endometriosis after a laparoscopy. I have been on several meds but currently on the pill, it doesn’t help. I still flood through my clothes and have labour like pains x

[Bubblepoppy]

Hi I got diagnosed with adenomyosis around 4 years ago with a internal ultrasound I get the pain everyday labour pains, stabbing pain, pain in back down legs and terrible aches, pain when I pee and pooing constipation, period is 10x worse pain wise, pain with intercourse, been on the pill the marina coil got offered esmya but refused that I'm now in the process of asking for a hysterectomy I'm seeing gynecologist today to get the say so, I hate the way they say it's period pain what every flipping day god I'd love my gynes to have my period pain then, I could slap them when they say this, I hope you get sorted out soon xx