After my sister being diagnosed with Endo and me experiencing the same symptoms I managed to get a referral to a gynaecologist.
Straight away she was dismissing all my symptoms and just wasn’t listening to me. I found this very frustrating!! I told her my sister has Endo and that I know it can be genetic and her reply was “Everything we don’t understand is genetic” then she laughed. I was by this point getting very annoyed and felt like this was a joke to her. She then examined me and I found it extremely painful but she said everything is normal then went and GOOGLED endometriosis 😲 So shocked that a gynae had to google a gynaecological problem.
Has anyone else experienced anything like this?? I got made to feel like I was lying.
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Hollyt1993
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Hey,m! Hope your okay? I have been dismissed many a times however not like this. This is terrible, If it were me I would write this down take it back to your GP & tell them what happened and ask to see a different one, what was the outcome of the appointment. Did she book any tests, follow up ect?
Hi 😊 thank you! My gp will be calling me on Monday and I’ll explain everything to her then. The gynaecologist has put me on the laparoscopy list as that was what I was pushing for. I believe the op would be with her so I’m going to get that cancelled as I feel like it’s all a waste of time it being with her!! She constantly kept on say “we won’t find anything” which is very disheartening!
Have you been diagnosed? If so how long has it taken you to get to this point x
That’s great that your going to speak to your GP Monday. I don’t blame you I would if it were me if you don’t trust the surgeon then it’s a lot to go through for potentially bad advice and if she googled it she properly won’t know what she’s looking for anyway. Hopefully your GP can put you through to another gyne fingers crossed x
She googled it?! I've also had an awful appointment with a gynae (and in a BSGE centre, no less) - she said my endo "didn't seem that bad" and then did a scan and declared she couldn't see any (which duh, it doesn't show up on scans.) She also said that since I tolerated the scan, my sexual pain couldn't be that bad. You can make a complaint if you're in England through PALS, which I would recommend
Urrgg hate it when they say this! Hope your alright!? Even if we did this to suppress the endo I certainly wouldn’t be able to take care of a baby atm in this pain. It’s only the answer if that’s what the patient wants. Otherwise there is no point of even mentioning it’s a whole different thing. Sorry it just frustrates me. X
It's the first time a doctor has said it to me, and I was so shocked! She didn't even ask anything like whether I worked, whether I had a partner, how long we'd been together - just "you're not that young (!!!), you should have a baby." I'm a 24 year old student with a partner who's just finished medical school, we're certainly not having a baby any time soon
Hi! Yes I was very shocked. Oh that’s awful, I’m sorry she made you feel like that! I’m hoping by going back to my GP she will be able to refer me elsewhere, where I am taken seriously! Thank you I might do that 😊
keep going back , doctor had me so convinced it was in my head i nearly died of a gangrenous appendix , my extensive endo was only found when i stopped going to doctor and went to A and E each time i passed out, i was really lucky that a midwife was doing gyny training and when doctor left the room she told me to "keep coming back till they do something" when they did hysterectomy it took 8 hours and another 3-4 to go that they couldnt do and my bowel was almost completely closed with scar tissue , 25 years from first treatment to hysterectomy plenty of tests ,ops blood tests but never diagnosed with endo and when i suggested it, was put on anti depressants
That's an absolute disgrace! So sorry you had to experience that. I wouldn't want her to do a lap on me either. Get a second consultation with someone else if you can and complain. For the record, my endo is "mild' but the pain during sex was excruciating, fatigue was debilitating and i was very poorly for some years; it only started to appear when I came off contraception and I was struggling to conceive. Since having children, I've gone gluten free and have a mirena coil fitted which has helped enormously and I only have some pain, some times around my period (and they're much much lighter)
This is exactly how I discovered my symptoms! I’ve been on the pill for years with no periods but have been having painful sex for about 2 years so I came off the pill to have a break and that’s when it all started!
That’s great, I’m glad your symptoms have eased. Thank you x
Me too Holly, I was on the pill for 11 years. Came off for 6 months and became hospitalised all down hill from there 😪 now back on the pill and had surgery x
hi. I'm sorry you've come across someone so unhelpful. I would definitely be going to pals she sounds very unprofessional. I got dismissed at every turn and hadn't even heard of endometriosis, only found out after a emergency operation for appendicitis ( it was the endometriosis causing the pain). Even after a diagnosis they were useless. In the end we saw a recommended bsge specialist privately ( at this point I was passing out regularly 🙉) and he was amazing, I had a change in pain management and surgery on his NHS clinic. Do some digging and go to every appointment with the name of the person you want to see and keep going back till they do you a referral. Its not taken seriously and it's such a debilitating disease. Xx
Your gyne is a complete joke, run a mile from her and never go back. She clearly isn't a gyne who specializes in endo! In fact, that gyne shouldn't even have a practice, she should shut shop and go fishing....What a useless gyne and what a horrible experience hollyt1993. Do your own research to find the BEST gynecologist in your area who SPECIALIZES in ENDOMETRIOSIS, that way you can be assured the best person is looking after you. Recommendations are also good.
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