Could it now be endometriosis of the bowl???

[yappy]

hiya I wrote on here a few years ago as I have grade 4 endometriosis...In 2010 I went in for hysterectomy only to told that they could not carry on with it my endometriosis was so bad on my bowl. So I now have the marina coil in which has help for a few years . last couple of months have been pretty bad as I have really bad pain an it only really eases when I sit on the toilet to try to relax??? I been doctors an been given pills for IBS which I don’t think it could be..anyone else had say pain as such?thanks for listening

[HollyMaria]

Hey... I was begging for a hysterectomy because I went through all the options but the consultant said to me he wouldn’t do it because I’m too young and if he did do it I’d still get pain

So I was like what the helllll. Turned out my bowel was attached to my bladder from adhesions sticking them together and literally the pain was hell. But now I have endometriosis behind my kidney and it cannot be removed because too risky internal bleeding etc

When you mentioned the only thing that helps is sitting on the toilet I can relate to that I don’t know if it’s a mental thing like you just want to go the toilet but nothing is coming out but because it’s on your bowels... I’d find out if they can operate on you for that and if not literally just come up with a pain plan and be firm it’s blatently not IBS i absolutely hate when all doctors try say that because theres clearly issues within the bladder bowel area it’s just easier for them to hand out IBS tablets and pro long the diagnosis and solution for managing the pain

Keep on fighting. Hope that my reply helps

[lslo23]

I have always suffered with IBS but during my first laparoscopy they found my bowel and uterus were attached and they said that's probably why I have IBS (it makes sense since I've suffered with it since I was 13, when my periods started). I've now been diagnosed with recto-vaginal endometriosis. I really struggle with flare ups when I'm due on or on my period.

I think a lot of gynaes don't tend to look at the bowel properly as it's not 'their area' but if you think there is something more going on I'd push to be seen again and to get them to have a proper look. Ultrasounds don't show anything unfortunately in that area but it definitely sounds like it's worth investigating further!

Hope you get it sorted soon!x