im new here: Hi all. I'm new to this page... - Endometriosis UK

Endometriosis UK

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im new here

LunaDaisy profile image
4 Replies

Hi all. I'm new to this page. Im someone who doesn't like to open up and talk about how i'm feeling much but im totally overwhelmed and have to admit i need help and didn't know where else to turn to.

I've had 4 ops for Endometriosis in the past. In the last year my pains have come back badly and i've not had a day without medication of some kind -

i've now been diagnosed with adenomyosis which is widely dispersed. Does anyone else here also have this - i feel so low, and trapped with this tonight. Sorry for potential moaning....i wasn't sure where else to turn. I have so many questions

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LunaDaisy profile image
LunaDaisy
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4 Replies
EndoJaz profile image
EndoJaz

Dont worry about moaning, this is why we are all on here as people see us as fine and healthy as they cant see the illness inside. Its good to ask questions and help others with your own experiences. I dont have adeno but my endo has returned after a hysterectomy so going to have ovaries out next. Its such a long battle and its hard to stay positive as its constant. What is the next stage for you treatment wise?

ChloeV profile image
ChloeV

You are welcome to share whatever you are feeling here anytime. Sorry you are going through so much and feeling low. The two will always be entertwined and sadly there is little help being offered for the emotional side of this condition. Hopefully reading and writing here will give you place to feel part of a bigger group who fully understands what you are going through. I had/have endo stage 4 and adenomyosis and chose to have a total hysterectomy in December 2018. Have you got a doctor you trust looking after you?

CindyWeze profile image
CindyWeze

Welcome to the forum, honey. It's okay to feel this way. These things are really common. I hope your luck turns around. Here's to hoping you experience better luck from now on. Don't worry too much about it! You'll get through it.

mod1712 profile image
mod1712

Hi LunaDaisy

Sorry to hear you are struggling. Just thought I would let you know we have a helpline which may help in you asking questions and opening up. All the information can be found here: endometriosis-uk.org/helpline

Megan, Endometriosis UK

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