Hello everyone. My name is Alice and I was diagnosed with endometriosis in March this year after 4 years of symptoms. They found it in my pouch of douglas and (even though I was told if they found it they would leave it and send me to a specialist surgeon) the surgeon burnt it out. Anyhoo.. for two months after I was pain free and felt the best I had in years. It was a short lived feeling as after 2/3 months my pain returned with a vengeance. Going back and forth for ages to my GP for pain meds etc and then I get sent to a endometriosis specialist (woohoo). I left my appointment with her in tears. She told me endometriosis is a disease that cannot spread or return and that my endo (as it was burnt out) would be gone so there is no point in doing any more surgery. What the hell??? Everything I’ve researched points to the fact that endo can and will spread and return, especially if burnt out rather than cut out. I feel at a complete loss. She told me I have this disease for the rest of my life and at best I can try and manage the pain with pills. Absolutely heartbroken.
Has anyone been in a similar experience?