This has happened to me a few times now.. if I can’t get to the loo quick enough or can’t undo my trousers quick enough I’ve wet myself. I can’t stop once it’s started. Luckily it’s mostly been at home and although I’m very open about this sort of stuff, I’m devastated it’s happening.
The whole left side of my pelvis feels heavy inside all the time.
My op is in two weeks and I’ll hopefully find out if it’s endo related or not..
but has anyone experienced this and did it turn out to be endometriosis causing it?
Any ideas much appreciated xx
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vmagpie
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I had issues like this as a child and it was horrible. I remember that feeling of when you let go and you can’t stop it. I can’t remember how I managed to get better control but I’m sure it was regularly toilet trips.
Have you tried doing pelvic floor exercises?
It’s not for everyone but I’ve heard kegal exercises are quite good. I think you need to do it on an empty bladder.
The only other thing I can suggest is having ‘sit downs’ even when you don’t feel like you need to go. Just take a trip to the toilet, sit there for 2-3 minutes and just try to empty your bladder. If you can’t go, you can’t go. But if you do, then that’s great. Keep doing it as maybe you’re letting your bladder get too full? I assume they can stretch? So maybe going more frequently would stop it from over filling. Maybe undo trousers on the way to the toilet?
Like you said, it could be endometriosis causing it. It could have spread on and around your bladder.
I'm 3 yrs post op and can totally relate to this. I recall the devastation of losing control and like you, when it goes, it goes, there is no stopping it. I've wet the car, clothes, even taking 2 or 3 spare sets to work just in case (often using them). I knew every shop within half a mile that had a loo that could give me access if needed, it was horrible. I had both endo and adeno. I had tests, for some reason I was producing much more urine than my fluid intake. Tenna lady were my best friends. I had the pelvic exercises, I stopped all the caffeine drinks as was told that could also trigger. In the end I was put on a medication called VESICARE 1 tablet a day and boy its great. I did try coming off it a while back but after a couple of wks it started happening again so I've just continued with them. 1 tablet a day is nothing if it stops those accidents. Get to your doc and get it sorted. You don't need to live like this. You're not alone. Big hugs.
Kegal exercises can work unbelievable wonders, but you do need to be taught - 'exactly' - how to do them, properly, by a medic trained in endo, women's urino-genital issues, and 'Kegal'. Plus, you have to do them regularly, maybe for the rest of …
I don’t even know for sure if I’ve got endo. All symptoms point to it and in addition I’ve got a growing lump in my abdominal wall, possible endo from C-section, don’t know if it’s pushing on my bladder or anything in that area.
Guess I’ll have to wait and find out. Hope you’re well xx
I've been having issues with this too. Bladder urgency and pain from a full bladder along with the pelvic pain. I've had to reduce my water/liquid intake and/or just sip at water depending on when and how long I need to leave the house for. I have to look up what places have toilets before I go out and if there isn't a toilet nearby I start to stress a bit which makes the bladder urgency worse.
I try to have a toilet routine when I am out and go to pee before I leave and when I get there and every 30 mins to an hour and then again before i leave even though I don't feel like I need to go but I always go a bit. Sometimes I have to go more often than that if my urgency is worse. In my worse urgency and pain days my bladder is intolerable and after I pee i would immediately feel the need to go again. Then I would have to sit down and secretly do breathing exercising to calm down and distract myself from the pain/urgency. It doesn't always work and I get nauseas from the pelvic pain and cramps anyways. One time I just managed to get the bathroom I had a mini panic attack while on the toilet.
At the moment I'm in the slow process of still trying to book in with a gyno as soon as possible for investigation into what my problem is. I feel your pain because it is so debilitating and embarrassing! I've had to keep wearing either super period pads or the slightly more comfortable and discreet mini pads for light bladder leakage just in case. I haven't had an accident yet (touch wood) but I've come very close and did/do leak a bit. I always need to sit down when it is bad to delay my toilet visits and it also is very uncomfortable and even painful for me to stand. Sometimes my pelvic pain and symptoms are so bad i can't leave the house,which has been happening for the past week for me.
One doctor said it could be tight pelvic muscles and that's why I get the cramping and spasming as well but she said it also could be a number of other things like endo, PCOS, fibroids, or institial cystitis, blah blah blah. I've been dealing with this for 2 years and a doctor prescribed me Vesicare to help the bladder frequency and cramping which originally didn't help very much so she also put me on Betmiga as well and that helped a lot. Enough that I was able to function for awhile again. After a year I just started taking the Betmiga and must avoid triggers like heavy lifting/carrying, limit my sex and orgasm frequency and certain sexual positions (I feel bad because I am in a relationship), and also avoid certain food and drinks that I know will make things worse like spicy food, citrus, alcohol, caffeine,although i can't seem to give up diet coke but I have reduced my drinking it and still reduced my water intake and i only drink it when I am at home and I know I don't need to go out that day or the next day or so.
For the last 5 week's my pelvic pain and other synptoms have gotten a lot worse and are on a daily basis ever since I changed from the pill to implanon and then came off implanon because of bad side effects it's out of my system now but I am getting worse still! The Betmiga isn't even working anymore. It's so depressing.
I hope you find a proper answer and treatment soon. I'm hoping I will too!
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