Sex...: New to this ! I was diagnosed with... - Endometriosis UK

Endometriosis UK

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Mollie99 profile image
11 Replies

New to this ! I was diagnosed with Endometriosis in August this year, after having my first lap. My symptoms were general pelvic pain, extremely painful menstrual cramps and sex was/is painful. I’ve been with my boyfriend a couple years, and as he was there through my diagnosis he is very supportive. However, I can’t help but feel awful for him when sex is painful, it’s got to the point where I don’t look forward to it anymore because I know the pain is going to occur. Help ! Anyone else feel the same?

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Mollie99 profile image
Mollie99
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11 Replies

That's actually something I'm wondering!! Just had my first lap and haven't had sex yet so not sure if the pain will have gone! Did the sex pains not improve after your lap then?

Mollie99 profile image
Mollie99 in reply to

Unfortunately, nothing has changed for me in general! Not to worry you, but it’s actually got worse since my lap! But everyone is different😊

in reply toMollie99

It's horrible we have all these other things to worry about and we don't won't to worry about this on top of everything 😩

Fallenleaves profile image
Fallenleaves

I can't have and don't feel like having sex at all for two years due to my pain and discomfort, it's the very last thing on my mind. My husband understands this so I guess I'm very fortunate. I wouldn't worry about sex. There are more important thing like your health, you come first in all this. Hopefully your partner will continue to understand.

India21 profile image
India21

Hi Mollie, I was eventually diagnosed in September this year. You sound very similar to me except I’m still waiting a Lap. Ive been with my partner over 3yrs. It’s putting a lot of strain on our relationship even though he is very supportive of me I do feel guilty.

Bella29 profile image
Bella29

My husband and I haven't had sex for several months due to my pain and fear of pain. I seem to now have developed a bit of a phobia about it and have been dreaming about sex instead! I know sex isnt so important in itself but I miss the intimacy and those few minutes when everything else in the world dissolves. My hubby and I keep mentioning it: that we wonder when it might be, but we don't actually say why: because it makes me feel bad and him feel guilty. We will have to find a way around it.. obviously there are other ways of being intimate but I'm even scared to be naked with him incase we have sex! Its a bit like when I was sex phobic after giving birth to our daughter! I guess the time will come, but I don't want to ruin the memory of how it can be with how it now is.. never thought this would bother me so much! Aside from the pain, I also stopped being able to climax internally... v explicit: sorry!: but my consultant said this is typical in endometriosis.... yet another thing we have to put up with!

Lulububs profile image
Lulububs in reply toBella29

Hi

I had my lap 10 weeks ago and they found no endo but i have to thick blood so i am on blood thinning tablets now.

I still cannot have sex, i have been to dr and they think it mayb pelvic floor problems? So i am seeing a internal therapist at mo and it seems to help relax internally. I think us women who have these problems down below we become traumatised and tight and stressed and thats where sex problems begin

MaloushkaPat profile image
MaloushkaPat

Hello! I have not got a formal diagnosis yet, but all my symptoms point to endo... I can only sympathise as I have not had sex for months with my boyfriend of 5 years. I am so grateful as he understands, he also deals with a chronic disease and totally gets where I come from but I can't help but feel like I'm the worst girlfriend on earth...we are all the same I guess! The thing is, since the beginning of my symptoms, my sex drive has completely gone and as I'm in pain on a daily basis, anything related to that area of my body just reminds of my pain and does not turn me on one bit!

I'm hoping to get formally diagnosed in the next few months so I can get an effective treatment and be on top of my symptoms to finally being intimate with my bf again!

Hopefully your partner will understand and the priority is your health! xx

clare_anne profile image
clare_anne

Hi Mollie. I suffered the same symptons as yourself and just had my laprascopy last week where they confirmed I had endometriosis. I've not had sex since my laprascopy but prior to it my partner of four years wasn't always keen to have sex because the fear he might hurt me. It has caused some strain on our relationship, there's a worry you're growing apart because the lack of intimacy, and I'm not sure how things will progress now after diagnosis. The best thing to do is to talk to one another though so you both understand how the other is feeling. X

Mollie99 profile image
Mollie99 in reply toclare_anne

My boyfriend feels the same, in that he feels he might hurt me. It hasn’t caused much strain on our relationship yet, I just feel like the worst girlfriend being in pain all the time and not looking forward to sex !👎🏼 we do talk, but i feel like we have the chat and it all just gets forgotten about ! ☹️

Abi_97 profile image
Abi_97

Hi I'm the same. For awhile I didnt want to have sex because of pain and nausea (that I think was caused by endo or ibs) but my partner is supportive. I'm supposed to be having the coil fitted soon I hope it will help with sex pain. Its good your partner is supportive 🙂

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