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Endometriosis UK
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Still unsure of diagnosis

Hi everyone, I've been trying to get a diagnosis for the pain i've been in for the last 4/5 years and am only finally now getting somewhere. My consultant called me today after an MRI scan and there were a number of things they found, I have a retroverted uterus (which i think is pretty common but can be caused by endo), I have adhesion's in my womb (the consultant said could also be caused by endometriosis), an endometrial cyst on my left ovary and another cyst on my right ovary, which they want me to go back for more tests on monday as they are unsure what exactly it is. The tests they are doing are cancer markers for C 125 I think they said? has anybody else had anything like this as my consultant didn't really say much about it I just heard the word cancer and didn't really take much else in! They also didn't mention a diagnosis of endometriosis although a lot of what I was told was as if they had confirmed it? if anybody else has had any experiences like this it would be good to hear from you!

thanks in advance :)

Danielle x

2 Replies

I was recently diagnosed with a complex overian cyst, doc did a ca125 test which came back raised.. got myself in to a panic. I had a laparoscopy soon after and was diagnosed with endometriosis. The cyst was benign. It's not uncommon for ca125 to be raised of you have endometriosis. Try not to panic, doctor seems to be doing the right thing.


hi Nina

thanks for the reply! I know and thank you for putting me a bit more at ease knowing you've had the same :) x

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