Help with Endometriosis at 58

[Teq123]

Hi ,

This will be my 1st post 😊 , I was diagnosed with endometriosis in 2004 ..after having a hysterectomy for heavy bleeding .

Endo was found on bowl , bladder cervix ,fallopian tubes right n left overy..

I had full hysto..with just left overy removed ..

I had a good recovery and had 2 x3monthly injections of Zoledex ..which did the trick.

No return of endometriosis...althou I gave been on HRT ..

I was advised endo could return due to HRT .

Now in 2017 , I started with endo pain age 58 😮 , had a pelvic scan and I have a complex cyst 6cm on right overy .

Now waiting to see gynecologist....should only be 2 week wait.

My question is any ladies on here at age 58 with endo pain ..

Or has endo ..

Thankyou for listening and sorry if it's a long post ..

[Marcia71]

Sorry to hear your news. I was in a similar place but had my hyster at 42 and as endo not removed properly I was left in excruciating pain. Finally got to a bsge clinic and had surgery this March - two and a half years later and endo removed properly and bowel unstuck from pelvic wall and adhesions removed and adept gel put in to hopefully stop more adhesions/ scar tissue forming.

I did have my ovaries out at time so I suspect they'll take you're remaining one now. If you still need HrT I was advised it must be a combined one to keep any endo at bay. I'm on Kliofem now.

Best of luck.

[Teq123 in reply to Marcia71]

Thankyou very much for your kind reply .

I don't feel alone anymore , and your information has helped me with trying to understand ..whats going on with my body

😊

[Teq123]

Hi , again thankyou very much for your very informational message .

I have been taking Hrt since 2004 , and still are .

At 1st my Ostradiol levels were measured with the consultant who did the Hysterectomy, but after 12 months or so I was discharged from the hospital, all seemed good .

What a have failed to say is I have been under the care of another gynecologist for last 13 yrs for urinary problems ,

He too is aware on HRT ,

I have had countless operations for incontinence, TVT , Sling and tapes , prolapse bladder..

I'm still under his care .

My gp has sent a letter with scan results

And blood results , to the gynecologist who I'm am still under .

Just waiting now for a appointment 😮 .

It's me that is worrying if it could be Endometriosis, as I thought I was clear ..

Just a matter of waiting now ..

Thankyou

[Teq123]

Hi ,

Just a up date from my post above..

I have been to see the specialist last Monday..

Said he was encouraged that the ca125 was normal , but the test was only 80% ..acurrate .

So I needed to have a Mir scan ..to determine what the cyst was .

Apparently there could be a very strong chance it could be Endometriosis ( eeek )..

As I have been taking HRT ...for the past 13 yrs and now 58 ..

Now coming off HRT !!

This afternoon the hospital rang to arrange a MRI SCAN ..date (next Monday) .

Very happy not waiting too long ..

The wait has been awful..

I suffer with UTI ..every 3 weeks have done for the past 18months or so ..

So much my body has become immune to most antibiotics..

I also have kidney disease stage 3 ..so limited to what medication I can have ..

This morning been to docs as I have yet another infection so feeling in a lot of pain pelvic area ...

Think this site is wonderful ..just air your feelings

Love Tilly