So please I found this forum and no doubt many of the threads and post will help on the road to recovery or managing any remaining condition.
Sitting in bed in a mild state of shock and very angry with my uninformed, unsympathetic and unsupportive GP.
I was omitted into hospital 2 weeks ago (after an 18 month long wait from referral) for an elective removal of uterus due to fibroids and heavy periods, hoping to keep my ovaries etc. I'd had to push my GP hard to get a referral for a hysterectomy. Now recovering from complete hysterectomy including both ovaries, fallopian tubes and cervix. Repairs to lower colon, bladder due to adhesion and lesions caused by endometriosis and facing immediate menopause.
At this point I need answers from my consultant as I haven't spoken to him personally since before the operation when we discussed the options and keeping all healthy organs. I'd like to know how extensive my endometriosis was and how necessary it was to remove everything including my cervix and whether a speedier diagnosis would have saved anything. I see my consultant in 5 weeks time, it seems like a long time to wait to get the full picture but I appreciate it is a suitable time for healing.
I had a hunch it was endometriosis: the years of period pain, abdominal pain, pain with digestion and bowel movements, and more recently chronic pain side splitting and back pain every night when lying down. My lovely husband listened to a radio programme 4 weeks ago and remarked on all similarities.
My GP has been totally unsupportive during my years of pain even suggesting to other members of the practice that my condition wasn't serious and I was a time/budget waster. I had to keep on and on and on just to be taken seriously.
I think I need to tackle a GP change when I feel stronger as I appreciate this may not be the end of my journey and I'll need full support for the bowel pain I am experiencing and menopause I may experience going forward.
I suggested endometriosis to my GP on several occasions with no response. She seemed happy for me to believe it was whatever I wanted to believe as long as it didn't eat into a budget.
Apologies for the rant. I just needed to help this off my chest.