Newly Diagnosed Endometrioma - where does it go from here?

Hi All, new to all this so bear with me :0)

Admitted on Saturday to local hospital with severe abdominal pain - after an ultrasound, X-ray and bloods I've been told I have an endometrioma on my right ovary. Bit of a shock really, led to believe for the last 20 + years I had IBS - but the more I read about the symptoms of endometriosis the more I think I never had IBS in the first place. Also becoming increasingly painful to have my smears done over the years - could this be related?

Have to go back as an out-patient for further scan and gynae review soon but would be grateful for your experiences of what I can expect next?

3 Replies

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  • I have had endometriomas on both ovaries and had them excised via a laparoscopy at a BSGE centre where they specialise in treating endometriosis which has helped me. You could ask your GP to be referred to a BSGE endometriosis centre if you aren't already going to one. I think it's best to have a diagnostic laparoscopy where the excision treatment for the endometriosis can be done at the same time. By the way, I have always had painful smears and IBS symptoms so I do think they are related to the endometriosis. I have found a gluten free diet has helped as well. I hope it works out for you and you get the treatment that you need.

  • Thanks for the reply. Thankfully my local hospital is a BSGE centre so I guess I'm lucky in that regard. Will look into gluten free diet - willing to try anything that helps.

  • I'm glad your local hospital is a BSGE centre. Just to say they also will probably suggest you go on hormone treatment. I would research the different types of hormone treatment for endometriosis before your consultation. It's best to make an informed decision when they go through all your different options. I am about to go on progesterone only pills so at the moment I am unable to say if it's any help. From what I have seen different treatments work for some people but not others, it's about finding out the best treatment to suit you. I hope this helps.

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