Hi there I'm new here. I am a father I need to let off some steam and ask a few questions
My daughter, who is 21, has finally been diagnosed with what we knew she had 6 years ago. Endometriosis. She's been diagnosed with so many things over the years, stomach migraines, IBS, kidney stones, possible ectopic pregnancy (even though she wasn't sexually active at the time) the list goes on and all the while we are wondering why they are avoiding Endometriosis. It's almost as though they hope it will just go away. Maybe in some extremely mild cases the patient is able to cope or the medical treatment actually works but my daughter was in agony most of the time and back and fore the hospital. Surely these cases must stand out to them, so why so long a wait for the Laparoscopy? All the time more damage is being done, more pills get taken. She even went on HRT for 6 months!!
It seems to me that Endometriosis is a dirty word. A frightening word from which Doctors like to run and fob patients off with ridiculous diagnosis. We don't even know what stage she has, only that it was too extensive to treat surgically. The doctor who treated her was great and everything but the truth would have been nice from the start. And here is the truth........
We think your daughter has Endometriosis so we will try some tablets, then when they don't work because we know they won't we will induce a menopause. This will work for the pain until we stop that treatment then everything will come back again. Then we will have a look inside and if there's only a tiny bit there we will remove it and if it's bad we won't because that surgery takes up to 8 hours and we can't do that for everyone. So worst comes to the worst your daughter will be popping pills for the foreseeable future with an ever decreasing chance of starting a family. All the best , see you in 6 months!!
Indignant as that may sound, it's what's happened. Anyone else experience this? I feel like I have to do something for her otherwise she's no better off than she was before the laparoscopy. To hear the doctor say she has Endometriosis was amazing after all this time and also good to know that there wasn't anything else more sinister going on, but I've been Googling the net for a long time about this subject for a specialist who performs a total pelvic peritoneal excision which apparently is very effective in the treatment of Endometriosis.