For people who have had endo tissue insid... - Endometriosis UK

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For people who have had endo tissue inside organs -

6 Replies

Hello,

Quick question for anyone who has been diagnosed with endo tissue getting into there bowel/bladder etc.

Do you have any symptoms whilst not on your period?

Thanks :)

Xxx

6 Replies
Stellauk profile image
Stellauk

I only have bladder symptoms during periods. I have IBS like problems during periods and other times too. I also had pain on the back of my right side during periods. However, the consultant said I had exceptionally mild symptoms related to my endometriosis. I am sure others may have different experiences.

All the best

in reply toStellauk

Thanks for that :) I'm waiting to see if my (severe stage 4) has gone through bladder/bowel but I don't have any bothersome symptoms when I'm not having a period so I'm kinda hoping that's a good sign.

Stellauk profile image
Stellauk in reply to

I don't think the symptoms related to the severity of endometriosis. I have mild bladder symptoms but the endometriosis has gone right through the bladder. Hopefully yours are not too bad.

mierran profile image
mierran

Yes, I had symptoms all the time. My endo infiltrated my bowel. I also have bladder problems.

I have quite a short menstrual cycle (26-28 days ) and a long period. I also got problems caused by ovulation. So it all merged together so I didn't get any good days usually.

I also have problems with gluten and lactose after my last operation.

Good luck with the investigations. X

Jaffacake3719 profile image
Jaffacake3719

I only get the bowel symptoms during my period, but my ibs always flares up around the time I would ovulate (I don't actually ovulate very much) but I always get mid cycle symptoms.

I had a laparoscopy in 2014 and my bowel was fused to other areas (I can't remember what now) and Im now due another lap to remove it again. My symptoms are eased if I take a supplement with B vitamins in... so a B complex or something. Stopped taking the supplement 3 months ago and had a hideous few months so back on it now and really seems to help.

Hope it all works out for you x

Broderskim39 profile image
Broderskim39

morning yes i had alot of pain whilst on my period which was unbearable and pain during me been off my period. when i would pass water it would hurt also. x

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