Hello there Poppy, thanks for the reply,
I live in Wirral which is unfortunately miles away near Liverpool. I also have ptsd from horrid attack which I wont go into. Had anti depressants for a long time coupled with no hair,not good for self esteem.Getting asked at bus stop by stranger how my chemos going and people not talking to me in home town scared to ask...they say. It got better when I stopped the pills they made my skin really itchy and have scars now, but put up with it as my head was so bad and did not know had endo until 2yrs ago. So had excision of endo but scared of all hormone treatments as hormones have done damage in the first place.
Have gynea appt next month, researched all my options tried most of them already and has made it worse.Like depot hormones hysterectomy the pill the coil I have tried them all and they just dont work.I used to live in the Columbia Hotel when I had a record deal years ago so remember high times in London (and the bad).
I have been trying the B12 and iron but stopped as was caring for mum, will start again with them nw you have mentioned it again. Family been pressuring me to have hysterectomy been going along with it as not sure what to do and is hard as mum is terminal with cancer so I dont feel that my endo is in any way important compared to her. Had to stop caring as collapsed through exhaustion.. really good to hear from you.I tried extrivex shampoo from drs very good and you can get it on perscription helps the hair. So disappointed with treatment options really dont help me personally.I would love to hear more about your experiences. How long have you known? Nearest endo meeting is Manchester for me will try when am well enough.
Check this article out on you tube:
endometriosis quality of life & productivity fertility & sterility 8/11 video interview
Sending you positive sunny vibes