Feels like an endless battle to get a diagnosis

Hi ladies,

I've suffered from painful period since as long as I can remember and I'm 27 now. It started to get to the stage where I was missing work. Went back and fore to the docs and was put on the pill and given various treatments but nothing eased the pain. I've been in a relationship for 9 years and every time we are intimate the pain is mostly unbearable! I was referred to a gyno and had an ultrasound but they said it wasn't Endo but since then I'm getting pain when ovulation too to add to the problem and bladder pain. It's getting me down. Any one else had similar experiences?

3 Replies

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  • Hi there,

    I just saw your post. I am in the process of waiting for a lap and hysteroscopy. It has taken four years. Please be persistent that's my main advice. You mentioned you had an ultrasound - from what I read and been told Endo doesn't always show up on a scan.

    I have the symptoms you have mentioned plus persistent pain on my right side.

    x

  • Thanks so much for your reply. I'm booked to go back to GP next week so I'll take it from there. Yes, I've read up that a lap is the best way to get a proper diagnosis. It's such a shame it takes on average 7 years to get diagnosed. Good luck with your tests. It's nice to be able to chat to people who have the same symptoms as me...

  • Hi, a laparoscopy is the only way to be diagnosed and even then general gyne often miss endo in certain situations and locations, look up online the bsge specialist centre list and get your gp to refer you to one , these are by far the best surgeons to 1 diagnose endo and 2 treat it with excision surgery,

    Xx

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