Was originally referred to a BSGE centre back in May. They misplaced the referral for nearly a month, and I had to get a second one sent through. They then gave me an appointment for September.
They cancelled this and gave me an appointment last week, so I spent £30 on train fare and travelled into London for it. I had a scan but they cancelled the appointment with the doctor on the day. Rang them on Monday to try and get an appt with the doc, only to be told that I couldn't have one because there weren't any. Rang again yesterday and was told that an appointment has been made for me in October. That's 10 weeks away. Add on to that their 6 month wait for surgery, and it will be nearly a year by the time they actually do anything that might help me. So much for the NHS 18 weeks to start treatment :/ The scan last week was effectively a complete waste of time. All they did was frighten me, tell me I needed surgery (which I knew anyway) and then not put me on the waiting list because a doc has to do that.
I have contacted the secretary at the clinic and PALS because it's just not good enough, but really, why does everything involving this stupid disease have to be such hard work? Clueless GP's. A&E docs completely out of their depth. Primary care refusing to renew prescriptions. And now this.
No point to this really, just a moan.