Hello - I'm 54 and had endo for about 25 years. My gynaecologist tried to do a hysterectomy a long time ago but my insides were so stuck he abandoned the procedure. I was treated with drugs and a regime of him draining off any fluid or cysts that collected . I accepted this for 20 years . My case was further complicated by the fact I already had a bag for bowel disease . The gynaecologist retired and I had a new one who was not happy with how my insides looked on MRI - I was told I had ovarian cancer and had to have regular scans all of which were inconclusive. In January this year I had a hysterectomy - I had two top surgeons yet despite this my bowel perforated - it's now 7 months later and I'm still having problems, I was in hospital for 3 months after it happened and remain traumatised and depressed. All because of endometriosis and maybe in my case, the bad management of it, I should have been referred to a more specialised centre years ago but I never questioned it and now I'm paying the price.
If anyone has had similar experience that they would like to share I would be grateful. I feel my life is ruined at times because of this.