Hysterectomy hell

[Groundhog]

Hello - I'm 54 and had endo for about 25 years. My gynaecologist tried to do a hysterectomy a long time ago but my insides were so stuck he abandoned the procedure. I was treated with drugs and a regime of him draining off any fluid or cysts that collected . I accepted this for 20 years . My case was further complicated by the fact I already had a bag for bowel disease . The gynaecologist retired and I had a new one who was not happy with how my insides looked on MRI - I was told I had ovarian cancer and had to have regular scans all of which were inconclusive. In January this year I had a hysterectomy - I had two top surgeons yet despite this my bowel perforated - it's now 7 months later and I'm still having problems, I was in hospital for 3 months after it happened and remain traumatised and depressed. All because of endometriosis and maybe in my case, the bad management of it, I should have been referred to a more specialised centre years ago but I never questioned it and now I'm paying the price.

If anyone has had similar experience that they would like to share I would be grateful. I feel my life is ruined at times because of this.

[Groundhog]

I'm in Wales and had my surgery in Cardiff. I know the two surgeons I had are excellent and probably saved my life as they didn't realise how bad it was until they opened me up. I do hold the previous surgeon party responsible as he should have referred me to a more specialist centre as the years of him sticking needles into my pelvis has caused the damage which added to the reasons the bowel perforated, they did manage to do complete hysterectomy though and ovaries etc all gone. I'm 55 next month so hope endo is now behind me as I'm not in hrt or anything. I do struggle though the perforated bowel experience has left me traumatised and I keep worrying it will happen again - I have been referred for counselling but as we all know we have to deal with these things ourselves.

Thanks for reply, your story sounds horrendous too. Hope you are well now x

[Groundhog]

Thank you Lindle - the surgery complications came as a massive shock as I wasn't expecting it and I'm still having problems, I am overweight so I need to sort that out and generally start looking after myself a bit better as in exercise. My body had a hammering but I hope the worst is behind me now, thanks again xx