Endometriosis UK

Back pain

I'm a bit puzzled and was wondering if anyone could help me. I had a lap in March and endo was found on my pelvic wall. I've recently been getting extreme back pain and pain in my koksik bone. I've read that quite a few ladies on here have endo in their pouch Douglas and was wondering if these are symptoms of having endo there. I know it's quite a hard place to look at and find it and only specialists can find it so maybe my surgeon missed it. It is getting to the point where I can't lay down for a long time as I get shooting pain down my back and legs and I just want a valid reason before i go back to my doctors and ask to be referred. Thank you :) xxx

5 Replies

Hi - you are right in that general gynaecologists do often miss POD endo because it is a hidden place. Please click on my name and have a look at my post on POD endo and the one on how to find a specialist and get a referral. The only reason you need is that you are still in pain and have a right to a second opinion. x


Ok thank you lindle :) x


The answer is yes my general

Ob gyni who done my diagnostic lap said I only had to minimal

Spots of endo on left ureter...

Low and behold I had it excised from pouch of Douglas 1cm DIE nodule behind my left ovary but over my ureter a smaller DIE lesion on my right utersacral ligament also excision of both pelvic sidewalls and widespread superficial endo ablated elsewhere...,

So your answer is most definatly

Yes. Xx

Good luck

Hope this helps. Xx



That sounds exactly like me :-( I have endo on the pouch of Douglas and I can not lie on my back at all when sleeping as so painful and I get the pains down my legs. It evens get to the point where lieing on my side is uncomfortable so I just end up getting up as more comfortable for me. I suffer terribly with lower back pain! I think it's def worth asking about, good luck x


Ok thank you guys I definitely think I may have it, especially with what you said about your symptoms croydebay and it isn't normal for a 19 year old so they can't say oh it's normal :) I'm going to book an appointment with a doctor soon, the only thing is its quite funny when you can tell the doctor/gyno where your endo is :) xxx


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