Just need to share: My journey began 1... - Endometriosis UK

Endometriosis UK

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Just need to share

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My journey began 10 years ago when my husband and I started trying for a baby. Like a lot of endo sufferers my diagnosis didn't happen until I came off the pill and the problems began. As a teenager I thought the chronic pain and heavy periods were 'normal'. 8 years on, 3 large endometriomas followed by 3 surgeries later, lots of tests, failed attempts at trying to conceive. I've now discovered I can't have IVF as my endo is too chronic and my surgeries have done irreparable damage to my ovaries. I was only told this yesterday, it feels so unfair and I feel so alone. Just needed to 'get it off my chest' so to speak.

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jvg69 profile image
jvg69

Oh dear, that is very sad news. You must be feeling really low. I don't know if feasible but could you get a second opinion? Have you been to a specialist centre?

I hear the same story a couple of weeks back, very hard news to take when all you want is to be a mummy. Don't give up, I've read amazing stories. Good luck and hugs xx

in reply to jvg69

Thank you for your kind response. We've not had a second opinion yet but they are forwarding our notes to us so we can do so. It feels like they've taken the only thing I had left - hope. It feels like they give you this news, say that's it we can't do anymore, then send you off as if it's nothing. Like you say, amazing things can happen and who knows what the future holds xx

jvg69 profile image
jvg69 in reply to

Ahh, don't give up hope, don't let the buggers take that. Be positive and get reading Lindley's post. All the very best xx

in reply to jvg69

Thank you 😊

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