Are my symptoms endometriosis?

[TenForward]

Hi ladies,

Yesterday, after 22 years of "interstitial cystitis", 15 years of vaginal pain (I was told it was all in my head), and 14 years of suffering with "IBS", I was told by a consultant I have endometriosis and a polycystic ovary. I'm gobsmacked and don't know how to feel. Relieved that I finally got a diagnosis after being continually fobbed off by the NHS, but worried for my body and the future.

My consultation felt very rushed and I didn't have the chance to ask the consultant why he feels it's definitely endo. Because my husband and I are trying for a baby, my consultant won't take any action until we've been TTC for a year, which means another 9 months of pain and frustration. He says me getting pregnant will sort it out, but if it doesn't happen because I have underlying fertility issues, I could be waiting 9 months for nothing (although I have regular normal periods).

If I may give a bit TMI, I'd love to hear from anyone with symptoms similar to my own who could reassure me that yes, this sounds like endo:

Bladder:

- constant full feeling

- urgency of needing to pee

- occasional burning of my urethra when I pee

- burning sensation in my uretha during sex

Vagina:

- burning pain inside my vagina during sex, inserting tampons, foreplay, etc.

Bowels:

- IBS like symptoms of loose stools, upset stomach, constant nausea (I also have a miatus hernia)

Any thoughts / observations / questions welcome!

Best

Lisa

[TenForward]

Thanks Lindle, you've given me food for thought. I'm 32 and my cycles are usually between 21 and 28 days. My period is currently two days late so hoping I'm preg! Your posts about NICE guidelines are interesting, I think I may ask for a second opinion through my GP (if I can ever get a bloody appointment).