No history of endo and diagnosis out of the blue!

[empems]

Hi all. I want to share my story although it is still evolving as I am waiting for a lap to determine the extent and spread of endo. It may have spread on to my bowels as I have had a lot of problems/changes with my bowels over recent months and these are still ongoing and am also still constantly weeing all the time!! This has all come out of the blue for me as I don't really recall ever having any of the awful problems a lot of you seem to have had historically. Mine started about 4 months ago with a bloated stomach, changes in bowel habits, really bad pains in lower pelvis ( that has moved to right side now) and nausea, loss of appetite, constipation, feeling cold and extreme tiredness. A recent scan revealed inflammatory disease most likely caused by endo and possibility of bowel endo etc.

I get pain most day and pain relief does not settle it. Hot water bottles are brilliant though!! I also feel so tired and unwelk although I am managing to work (just). Can anyone tell me what I am likely to expect next? I've had my child thankfully, he is 20, and I'm not planning any more. The doc that did the scan said about removing both ovaries or maybe having a a complete hysterectomy!! When he did the internal he touched a part that was so painful I nearly hit the roof. He therefore abandoned the rest of the scan.... !! Any help from you lovely experts that have been through this would be so helpful and reassuring. Thank you xxx

[empems]

Hi Lindle. Yes I was on the pill for many years with a break of 3-4,years and then I was fitted with the Mirena coil over 2,years ago. I still have this in now. Does this in some way add to the picture then? X

[empems]

I will be 45 in September. How do I find out about endo specialist centres?. I didn't know they existed. Thank you x

[empems]

No I'm not menopausal yet thankfully. X have read the posts and very helpful. Wondering whether i have endo on bowel and poss bladder?? X