Endometriosis UK
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Hello, I have endometriosis, but a life too!

Oooo, that felt good saying! I have lived in a wonderful world where I ignore it, struggle on and pretend all is fine and this forum has made me realise it's okay to admit something is wrong!

I had a cyst and endo zapped at 24, was told to hurry up and have kids, haven't but did a lot of other cool stuff, and then at 35 we started trying with a not too surprising story following. Reading your stories I think I have a high pain threshold and a body that hides things but I have still never been right. Surgery last week was good, except a mis-communication still means I have tubes and need more surgery before IVF. That upset me no end! However, it is nice to stretch and not feel like I am glued together inside for the first time in ages though!

Today I have decided not to cry all day any more, I'm getting sick of myself! I am meant to be a big strong woman right? Lol, anyway between the odd sneaky sobs I am working on getting better and getting back to work, which I love, and then the next step. I would say by the end of the summer IVF will have started. I think my attitude could my biggest barrier if I feel sorry for myself. Something's changed this week though and I have admitted I need help and support, well as a couple we do, a broken leg is fine to talk about with friends so what's different? So, I'll be popping on here more often and hoping to help anyone else who's having a wobble too.

If any of you are in West Wales please get in touch, there's no support group this side of Cardiff and (although the online one is fab) I would be up for tea / cake / walks with anyone around here for a natter.

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Forgot to say that my head has been so full recently I finally, after months of chaos, decided to keep a diary so I could get it all out of head and make more room for nicer things like holidays or chocolate. If it helps anyone else to see a time scale etc then it's here….. getjealous.com/blog.php?go=...


Good for you !I'm loving your attitude really healthy don't know if you do this but I have ups with all of this and downs as well depends where my endo is taking me !at the moment I'm on a slump having to make decsions regarding bowel surgery etc but prior to this I had a fantastic 18 months of bliss with no pain on zoladex oh well I just keep thinking of my next up they are there to be treasured when they come along

Thankyou for your post it's so nice to hear some positive thoughts!!!xxxx


Thank you, being at home on my own this week has been really hard as too much time to think so kicked myself up the bum yesterday , I think I was running out of tears :) Had also just had a lecture from my sister about putting myself before others….will continue to try my best! Hang in there, life is all up and down anyway, I guess we just get an extra reason for it sometimes. I do get them and its not always endo but now I think back, a lot of it is related. Have a good day! Hope the sun is shining wherever you are! :)


Thank you for sharing this, you've really helped me feel better and more positive :) Sounds like you are on the right road, fantastic xx

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