Very confused and lost.

[beano_1]

I had a laposcopy just before Christmas and the surgeon told me that she found endometriosis on my uterus and my bladder. She couldn't touch my bladder in case she damaged it. She also found my Ovary had enlarged and it had a cyst wrapped around it that burst when she was draining it. Anyway, she told me and my husband that we would have to start planning for children and that I would need to start Zoladex to put me on a fake menopause for 6 months. I was happy to do this and just relieved that someone finally had found my problem after years of searching for answers.

So I had my first injection and everything was fine, I still had a period which was quite painful but no other symptoms so all was good. But then I went to have my second injection with the surgeon and I went on my own without my husband this time thinking it was just a quick in and out appointment but no, she started the conversation with telling me the biopsy came back clear but showed inflammation but some people with chronic inflammation have this injection still and they find it works, however it I find it does not work then I do not need to continue. I was shocked by what she was telling me because one minute I am told I have endometriosis and have to be on the injections and the next it is a different story. So confused, I asked her if I had endometriosis if the biopsy came back clear and she started talking in riddles and said something along the lines of, "well let me show you the pictures again, as you can see you have the marks all on your bladder and your uterus but we couldn't test what it was on your bladder in case we damaged it so we will treat you as if you have it"

So now I am very confused and my husband is very annoyed at how it has been left. I am going to have my next injection in 4 weeks and my husband is coming with me to ask further questions but I wanted to know if this has happened to anyone else where they have endometriosis that is visible but then the biospy comes back clear?

[sparkleghost]

Hi Hun. I just wanted to let you know exactly the same thing happened to me. Was promised if any endo was found it would be ablated but as they found some on my bladder they left it as if they'd punctured it, it could be life threatening. So they just separated my adhesions - I never found out if the rest was ablated, they found it in my pouch of Douglas too. They then put me on prostap which acts in the same way as zoladex, Ie it creates a kind of false menopause. I completed the treatment for 6 months, if I'm honest it didn't help with the pain - my lower back was still awful - but I did conceive twice after the treatment after years of trying. So if you and your husband are trying for a baby I would say its definitely worth sticking with. Everyone is different hun but I hope it works for you and just wanted you to let you know that you're not alone x

[beano_1 in reply to sparkleghost]

Ah thanks for that, just what I needed! Xx

[Vickal]

I have a very similar diagnosis to both you and sparkleghost. My lap showed my uterus was stuck to my bladder with endo, my ovary was 90% covered with endo and stuck to my appendix. Also found in the pouch of Douglas and one endometrioma on my ovary. This was diagnosed as mild to moderate endo. I was disappointed that no ablation was done and was given the same reasons as you.

However no hormone treatment was even discussed with me. My gyne said that we needed to get pregnant as quickly as possible, told me to come back in six months if I wasn’t pregnant and also asked my husband to do two sperm samples. Unfortunately the sperm samples came back showing a problem so we were referred to the fertility clinic and after another six months of tests we are about to start our treatment next month.

It’s annoying having to wait four weeks until your next appointment to be able to ask any questions. I’d suggest writing them down as they occur to you so you don’t forget any when you’re there.

Good luck, like sparkleghost says you’re not alone! xx

[beano_1]

Thanks for your reply. I just don't understand why it is there visually but on the biopsy it came back clear. It makes no sense. Xx