Endometriosis UK
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Bladder sensation help!

I have had endometriosis since 1992. I have a new strange sensation going on with my bladder and wondered if any of you have the same thing.

I do not seem to be able to hold much in my bladder and visit the loo numerous times of the day. This has been going on for as long as I remember. Recently I feel as though I haven't passed all the urine. I still feel as though I could wee again straight after a trip to the loo. If I do go again only a small amount or nothing comes out! (Sorry to be so graphic)!

I have no stinging, burning or pain when I pass urine and no symptoms of an infection.

I have never been diagnosed with Endo on the bladder. I am waiting to see an Endo specialist, but I don't know how long I will have to wait to see him!

Any advice?

Thank you in advance.


4 Replies


I have had this problem for many years, had a lap 2 months ago and they found Endo in lots of places but one place was on my bladder, they removed it so hoping it sorts this out.

Hope you get some help soon.


I to have the very same problem. I am always at the loo. I have had endo for 10ish years. I also used to have really bad cystitis years bfore endo so they took me into hos to stretch my bladder which did help but only only short term. I had a lap this year but unfortunately the endo couldnt be lasered because it was in The Sac of Douglas. As I believe its never been on my bladder. My ovary, fallopian tube, abdominal wall are stuck on my left side so maybe that's why I get the urge to pee all the time. Hope you get sorted soon.



I had that problem too for years but even when I was admitted to hospital a nurse checked with an ultrasound and said my bladder was empty even though I felt the desperate need to go to the loo. Sometimes I get pain in my abdomen when go too. Hope you get your appointment soon x


At my lap they found an infiltrating nodule of endo on my bladder - it had nearly gone through the wall of my bladder. I had always needed the loo (it was a a running joke with me and friends: I always knew where the toilets were when we were out!). This predated my period problems (by YEARS) that led to my endo diagnosis, I had not thought to say to the gynae about my mad toilet habits as I had no Idea then that it was related in any way and they had built up over the years gradually.

After my lap I was amazed that I didn't have to get up in the night, didn't have to go to the loo several times before I went out of the door every time etc etc. So yes it is possible and your symptoms are very like me. I also had stuck ovary/endometrioma, adhesions, patches all over - but the bladder nodule was the one really unexpected endo patch.


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