Hi Gandalf. Did you have speech therapy when you were first diagnosed? I had a year seeing a great speech therapist when I was first diagnosed in 2013. My lovely therapist played a huge part in my recovery. I’m wondering if the NHS still provide this service to encephalitis survivors now?
Hi HSE, thank you for your reply. I did receive six sessions of speech therapy via the NHS which taught me some very useful techniques, breathing, pausing and some of the science behind speaking. In unusual situations where I may be stressed or anxious I tend to forget these and speak as above. People generally understand and are very patient and don't mind. It can be quite funny and at least it makes people realise that there are those around us whose disability may not be visible. I have a hidden disability lanyard which also helps.
I volunteer for a speech and language charity for after brain injury. Its amazing the variations of problems that people can have after a brain infection or injury. They help massively though - I am the same as you and when I'm stressed or anxious then the techniques go out the window ...but I feel like I'm learning all the time how I can find new ways to deal with my issues. I feel like its good to recognise these problems, its how I try and make them better
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