No clear diagnose

[Juppiter]

Hi there, I am from austria, 32 years old, and I got a neurological disease in june 2024, I was 16 days in hospital.

It start with cognitive disfunctions. On next day with symptomatic like stroke. On my right side, it starts down my feet and goes up to my head. When it reaches the head I cant speak clear and I was confused.

First in hospital they told me it was migraine. But I never had this before. I was really scared.

Few days later this attack came back. I took migraine pill, like the doctor recommended to me. But it gets worse. I cant speak, my body cramps, I cant see good anymore, I cant move, it was horrible. After two hours it was over, but I was really confused and angry. My boyfriend was with me and took care of me, <3 he is the best

The third and last attack was two days later. I took another migraine pill from another pharmabrand. And it was so hard, I end up in hospital then. Bcz I had fiber and I was really confused. Cant speak and see... And it feels like I am locked in my body and I only want this to stop... Horrible...

I got prednisolon and of course antibiotics but they couldnt find the cause of this inflammation in my brain. I had a pleozytose and once a EEG control with some struggles on left temporal brain side.

I go home with diagnose "PMP(or handl syndrome)

and my neurological extern doctor said she thinks it can be autoimmune encephalitis.

We will do a PET Scan soon, maybe they will find an inflammation which could be the cause of this. I hope no, but I want to know what it was, if it can come back...

Fact is, I quit my job because I have to rest. I am really fast exhausted... It gets better from time to time but when I do more exhausting things, I feel this crawling under my skin again. But only on the right side again, like when I had the attacks. And I get really really tired...

I do not take prednisolon since end of july.

I wanted to ask if somebody also feels this crawling under the skin? Or somebody here with PMP(handl syndrome) ?

I am happy to be here and can share my experience with other people with brain disease. I do not feel alone

[kitnkaboodle]

Hey, sorry you're going through this. Have you had a lumbar puncture? To test cerebrospinal fluid for neuronal autoantibodies. That's the way to confirm antibody-positive autoimmune encephalitis.