Help what help?: My doctor ignores my... - Ehlers-Danlos Sup...

Ehlers-Danlos Support UK

2,989 members940 posts

Help what help?

insanetigger68 profile image
1 Reply

My doctor ignores my wish to see specialist for EDS. And parkinson im now really truggling with bad tremor and balance issues to the point i. Keep falling. I m desperate 4 help

Written by
insanetigger68 profile image
insanetigger68
To view profiles and participate in discussions please or .
1 Reply
cyberbarn profile image
cyberbarn

Bad tremor and balance issues may not be EDS. There is a saying called Hickham's dictum: A patient can have as many diseases as they damn well please.

Can you see another doctor and rather than asking for a referral to an EDS specialist just present the symptoms? You could also talk to the practice manager and if that doesn't help you can contact your local PALS office

nhs.uk/nhs-services/hospita...

I hope you can find someone to listen to you soon.

Not what you're looking for?

You may also like...

Need some help

Hi there , I'm new on this and was wondering if anyone can please help me ? I was told a few weeks...

Stretchy eye and face skin... HELP

My eds is making my facial skin more elastic as I age.. My upper eyelids are starting to hang over...

I can’t walk I’m in agony! Please help?

Hi I did a bit more walking over the bank holiday than I’m used too and now I can’t walk! I...

What info to take to doctors?

Im arranging to go to the doctor soon with as much info about EDS as i can. Are there any documents...

Is it Worth Seeking Help?

Hello I’m new here! Recently I’ve become more aware of EDS and realised I relate to it a lot...