My doctor ignores my wish to see specialist for EDS. And parkinson im now really truggling with bad tremor and balance issues to the point i. Keep falling. I m desperate 4 help
Help what help?: My doctor ignores my... - The Ehlers-Danlos...
Help what help?
Written by
insanetigger68
To view profiles and participate in discussions please or .
1 Reply
•
Bad tremor and balance issues may not be EDS. There is a saying called Hickham's dictum: A patient can have as many diseases as they damn well please.
Can you see another doctor and rather than asking for a referral to an EDS specialist just present the symptoms? You could also talk to the practice manager and if that doesn't help you can contact your local PALS office
nhs.uk/nhs-services/hospita...
I hope you can find someone to listen to you soon.
Not what you're looking for?
You may also like...
Is it Worth Seeking Help?
Hello I’m new here!
Recently I’ve become more aware of EDS and realised I relate to it a lot...
Stretchy eye and face skin... HELP
My eds is making my facial skin more elastic as I age.. My upper eyelids are starting to hang over...
Help where should I turn.
Hi well where do I start. Something has just clicked and I think myself ny daughyer and son and...
Physician with an undiagnosed condition--please help.
The ultimate irony: a physician who cannot figure out what is wrong with themselves.
For my...
Where to get help on diagnosing EDs.
Hi, Where can I go to get genetic testing done for Ehlers Danlos. I live in East Sussex in the UK....
Related Posts
I can’t walk I’m in agony! Please help? 
What info to take to doctors?
Diagnosis.. can anyone help me with the understanding of it all please 
Has anyone been to a residential pain management course? If so what was your experience.
Who's here, what form of EDS do you have and how are you doing?Moderation team
edsuknikkiPartner
