Hi 34 F diagnosed with ME/CFS, fibro, pernicious aneamia, migraines, ibs, orthostatic issues etc. Rheumatologist said my fingers are hyper mobile, podiatrist said my legs/hips particularly right side (dominant side) are hyper mobile too. The dentist said there’s a lot of movement in my jaw- I also have TMJD.
I’ve checked the Beighton score- I get points for the thumbs, fingers and spine. None for elbows. Knees I’m unsure. My old yoga instructor said I hyperextend my knees but I’m not sure if it’s 10%.
I’ve got a call with pain management next week and wanted to discuss the possibility of EDS or hyper mobility with them. Does anyone have any guidance on how to go about this?
I don’t have stretchy skin but my sibling does. My mum, gran and sibling also have lots of joint/muscle pain. We all got told growing pains and my mum did gymnastics. Also family history of migraines, allergies, fainting/pre-syncope and ibs. We all bruise like peaches.
I also have fallen arches, LLD, hallux limitis and lots of stretch marks since age of 10. I’m awaiting cardiology for POTS assessment.