Hi I'm new here, we are just trying to understand what is happening to our granddaughter, she is 8 years old now and has been told she has hyper mobility.
She has had stomach troubles since she was 3 years old, sudden soiling of pants after fully toilet trained for a year, after lots of hospital visits over the next 2 years she was diagnosed with lactose intolerant and intolerant to other sugars, so lactose free diet has been followed. last year she started with odd things happening.
Waking up during the night sweating and headaches.
Heart racing for no apparent reason and sweating profusely.
High temperatures,sent home from school numerous times.
Swelling and rash on legs that were painful for a couple of days.
Swelling of face.
Passing out due to low blood pressure.
Sudden onset of clicking joints and pain.
Her pallor is often white, you can sometimes see the colour drain from her, but she does not feel faint.
Not sure what to do to help.